Do Hospice Patients Need Hospital Care: A Caregiver’s Guide

Jul 10, 2026 | Hospice Care, Light the Way Blog

Do Hospice Patients Need Hospital Care: A Caregiver’s Guide

One of the most frequent questions caregivers ask is whether a person receiving hospice care can still go to the hospital. The short answer is yes, it depends on the situation and what your goals of care are. Understanding how hospice works, and how Medicare and Medicaid coverage apply, can help caregivers feel more confident and prepared when unexpected situations arise.

Hospice Care and the Focus on Comfort

Hospice care is designed for patients with a life-limiting illness who are choosing to focus on comfort, quality of life, and support rather than curative treatment. Hospice services are typically provided wherever the patient lives, at home, in a nursing facility, or in some cases an inpatient hospice unit. Hospice services include medical care, symptom management, emotional and spiritual support, medications related to the terminal diagnosis, medical equipment, and 24/7 on-call support.

Because hospice prioritizes comfort and symptom relief, many issues that might otherwise lead to a hospital visit can often be managed at home with the hospice team’s support.

Medicare Coverage and Hospice

Under Medicare Part A, hospice is a comprehensive benefit that covers:

Visits from nurses, aides, social workers, and chaplains.
Comfort medication and any medications related to the terminal illness.
Medical equipment and certain supplies.
Short-term inpatient hospice care for symptom management.
Respite care for caregivers.

While enrolled in hospice, Medicare does not cover hospital care related to the terminal diagnosis, as hospice assumes responsibility for managing those needs.
Said a different way, hospice becomes your insurance provider and like any insurance must be aware and approve of visits to the hospital.

It is the hospice’s responsibility to manage any issues you are having which we can do in your home, facility or in our inpatient hospice unit.

When Can a Hospice Patient Go to the Hospital?

For issues unrelated to the terminal illness:
If a patient experiences a medical issue unrelated to their hospice diagnosis, hospital care may be covered by Medicare or Medicaid, depending on the circumstances. It is important to notify the hospice team so they can help coordinate care. Please note that a fall with an injury, an infection, or dehydration is considered related to any terminal illness. If a patient with cancer has a heart attack, that would be considered unrelated.
If goals of care change:
A patient always has the right to revoke hospice care if they choose to pursue curative treatment in the hospital. Hospice can be restarted later if the patient again meets eligibility criteria and wishes to return to comfort-focused care. Hospice must be notified immediately, or your Medicare is not available to you or the hospital.

Medicaid Coverage and Hospice

Medicaid hospice benefits are the same as Medicare’s and vary slightly by state.

Why Calling the Hospice Team First Matters

Hospice teams are available 24/7 and are trained to respond quickly to changes in conditions. Calling hospice before going to the hospital can:

Prevent unnecessary and stressful hospital visits.
Allow symptoms to be managed at home or in an inpatient hospice unit.
Ensure care aligns with the patient’s wishes.
Avoid unexpectedly denied medical bills.

Supporting Caregivers Through the Decision

Decisions about hospital care can be emotional and stressful. Hospice teams collaborate closely with caregivers to explain options, honor patient preferences, and provide guidance during urgent situations. You are never alone; help is always just a phone call away.

Hospice patients can go to the hospital, but hospice care is designed to reduce the need for hospitalization by providing comprehensive, comfort-focused care wherever the patient lives. Medicare and Medicaid cover hospice services related to the terminal illness, while hospital care for unrelated conditions may still be covered. When questions arise, the best first step is always to contact the hospice team, who can help navigate decisions with clarity, compassion, and support.

Questions about hospice care or what to expect?

If you or someone you care for has questions about hospice or what to expect, reaching out to a trusted hospice provider can help bring peace of mind during a challenging time. Please contact Lightways Hospice and Serious Illness Care directly at 815.740.4104 for any questions you or your family may have regarding hospice care and coverage.

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Call 815.740.4104

Understanding Dementia Care: The Role of Palliative Care and When Hospice Is Needed

Jun 12, 2026 | Hospice Care, Light the Way Blog

Understanding Dementia Care: The Role of Palliative Care and When Hospice Is Needed

Dementia is a progressive, life-limiting condition that affects memory, thinking, communication, and eventually the body’s ability to function. As dementia advances, individuals often require increasing levels of support as the brain gradually loses its ability to coordinate everyday activities such as eating, walking, swallowing, and communicating.

While there is currently no cure for dementia, specialized care can significantly improve the quality of life for both patients and their caregivers. Understanding the benefits of palliative care and hospice care, and recognizing the signs of advanced disease, can help families access the support they need at the right time.

How Palliative Care Supports Patients Living with Dementia

Serious Illness Care (or palliative care) is specialized medical care focused on improving quality of life for individuals living with serious illnesses, including dementia. Unlike hospice care, palliative care can begin at any stage of the disease and can be provided alongside treatments intended to manage symptoms or slow progression.

For patients with dementia, palliative care helps address many of the challenges that arise throughout the disease process, including:

Managing symptoms such as anxiety, agitation, depression, pain, sleep disturbances, and behavioral changes.
Coordinating care among multiple healthcare providers.
Supporting difficult conversations about future healthcare decisions and goals of care.
Assisting families with advance care planning.
Providing emotional support for patients and caregivers and connecting caregivers to resources.
Helping caregivers understand disease progression and what to expect as dementia advances.

Because dementia often progresses gradually over many years, serious illness care can be an invaluable resource long before hospice becomes appropriate.

10 Signs It May Be Time for Hospice Care

Hospice care focuses on comfort, dignity, and quality of life when a patient’s illness has reached an advanced stage. For individuals with dementia, recognizing the signs of decline can help families seek support before a crisis occurs.

Frequent Falls and Increasing Weakness
As dementia progresses, muscle weakness, impaired judgment, and poor balance can lead to frequent falls and injuries. Patients may become unable to walk safely without assistance.
Difficulty Swallowing
Many patients with advanced dementia develop dysphagia, or difficulty swallowing. They may cough or choke while eating, pocket food in their cheeks, or have trouble managing liquids.
Significant Weight Loss
Weight loss often occurs because eating becomes more difficult and appetite decreases. Malnutrition can contribute to further weakness and increased vulnerability to illness.
Limited Communication
Speech may become increasingly difficult to understand. Some individuals may communicate only through facial expressions, gestures, or other nonverbal cues.
Loss of Bladder or Bowel Control
Incontinence becomes common as dementia affects muscle control, mobility, and awareness of bodily functions.
Increased Sleeping and Reduced Alertness
Patients may spend much of the day sleeping and show less interest in activities, family interactions, or their surroundings.
Little or No Verbal Communication
Individuals may speak only a few words or stop speaking entirely. Understanding and responding to others may become increasingly difficult.
Reduced Food and Fluid Intake
A noticeable decline in eating and drinking often occurs as the body begins to slow down. This is a common part of the natural progression of end-stage dementia.
Recurrent Infections
Advanced dementia weakens the body’s ability to fight illness. Repeated infections such as pneumonia, urinary tract infections, or skin infections are often signs of significant decline.
Changes in Breathing
Breathing patterns may become irregular, shallow, or include periods of apnea (pauses in breathing), particularly during the final stages of life.

When Is Hospice Appropriate for Someone with Dementia?

Hospice care is appropriate when a physician determines a patient’s life expectancy may be six months or less if the disease follows its expected course.

For dementia patients, hospice eligibility often includes several of the following:

Dependence on others for most or all activities of daily living
Inability to walk independently
Minimal or no meaningful verbal communication
Significant weight loss or nutritional decline
Difficulty swallowing or aspiration risk
Recurrent infections such as pneumonia or urinary tract infections
Frequent hospitalizations or emergency room visits
Progressive decline despite medical interventions

Many families are surprised to learn their loved one qualifies for hospice. Unfortunately, dementia patients are often referred later than ideal, limiting the time they and their families and caregivers can benefit from hospice services.

Why Earlier Hospice Referrals Matter

Multiple hospitalizations can be especially difficult for individuals with dementia. Changes in the environment often increase confusion, anxiety, agitation, and emotional distress. Hospital stays may also expose patients to additional risks, including infections and further physical decline. Hospital stays may also not align with the patient’s goals to stay home or in their facility without hospitalizations or emergency department visits.

Hospice provides support wherever the patient calls home, helping manage symptoms and urgent concerns without unnecessary hospital visits whenever possible.

Many physicians are afraid and hesitant to initiate conversations about hospice. Families should feel empowered to take the lead and discuss both palliative care and hospice options with their healthcare providers and ask for an evaluation when they believe additional support may be beneficial.

What Hospice Provides for Dementia Patients and Their Families

Hospice care addresses the physical, emotional, and spiritual needs of both patients and caregivers through an interdisciplinary team approach.

Services include:

Expert pain and symptom management
Regular nursing visits and medical oversight
Certified nursing assistant support for personal care needs
Emotional support and counseling
Spiritual care services
Integrative therapies such as massage, music therapy, and aromatherapy
Education about disease progression and what to expect
Guidance with difficult care decisions
Medication, equipment, and supplies related to the hospice diagnosis
Respite care and caregiver support

Hospice care can be provided in a patient’s home, an assisted living community, a skilled nursing facility, or an inpatient hospice unit.

A Compassionate Approach to Dementia Care

Watching a loved one decline from dementia can be overwhelming and heartbreaking. Understanding the signs of advanced disease and knowing when to seek additional support can help families focus on what matters most: comfort, connection, and quality of life.

Whether your loved one is in the early stages of dementia and could benefit from palliative care or is experiencing the signs of advanced decline that may indicate hospice eligibility, you do not have to navigate this journey alone.

The right support at the right time will make a meaningful difference for both patients and the people who love them.

Questions About Palliative Care and Hospice Services?

To learn more about palliative care or hospice services for individuals living with dementia, contact Lightways Hospice and Serious Illness Care at 815.740.4104.

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Contact Lightways

Call 815.740.4104

The Grief Experience in the Beginning

May 8, 2026 | Grief Support, Light the Way Blog, Lightways News

The Grief Experience in the Beginning

After learning of their loved one’s death, grievers often describe their experience in similar ways:

“My world stopped, while the rest of the world moved on”.
“I feel as though a carpet has been pulled out from under me”.
“I feel like I’ve lost a limb, like I’m no longer a whole person.”

This sense of disbelief and isolation is often compounded by strong feelings, insistent thoughts, difficulty concentrating, and changes in sleeping and eating patterns. Grief affects us emotionally, mentally, physically, and spiritually, often leaving grievers feeling disoriented, overwhelmed, and exhausted.

What Griever’s Need

Thus, it is not surprising that in the beginning of grief, it is often hard for a griever to identify what they need. And, when seeing someone they care about so affected, supporters often share that they feel helpless, and at a loss of what to say. Unfortunately, these two conditions can result in nothing being said about the person’s loss, and an avoidance of the griever altogether, thus increasing the griever’s sense of isolation even more.

Due to the challenges of supporting grievers, the Grief Counselors at Lightways wanted to share what they have learned from grievers about what is helpful and not helpful.

Here’s what they had to share:

Tending to our Basic needs

Many grievers describe how overwhelming grief is at first, and that during this time, they are often only able to focus on their basic needs, such as rest and comfort. Grief Counselors share the importance of self-care, which includes anything that tends to “your body, mind, and soul,” and helps you to sustain yourself during grief. Some grievers struggle with eating and sleeping, so they are encouraged to hydrate, eat small meals, and take naps to stay nourished and rested. For some grievers who have been caregivers, the Counselors also recommend that they make sure to see their health care provider if they haven’t in a while. Additionally, because grievers are often operating on limited reserves, they need to adjust their expectations of themselves. Receiving help from their supporters with day-to-day tasks and having a reduced workload can be very helpful to some grievers.

Tending to our Pain

Grief reactions can be very intense for some grievers. So much so that some grievers use the word “pain” to describe their grief. Thus, Grief Counselors work with grievers on identifying what types of things might “soothe” the pain of grief. Often, what grievers discover is that sensory experiences help soothe the pain of grief. Counselors encourage grievers to identify what sights, sounds, smells, textures, and tastes provide them comfort when they are hurting. Examples of things that can help are their loved one’s clothes or perfume, pets, nature, tea, pictures or videos or their loved one, soft blankets, and more.

The right balance of time alone, and time with others

Because of the need to attend to basic needs, some grievers find they need time alone to do so. Other grievers feel less distressed when they are around others and seek connection. This is very individual and can change throughout the grief process.

At the beginning of grief, as a griever is trying to adjust to their “new normal”, they often have a lot of tasks that they need to take care of, such as planning final arrangements or dealing with financial matters. One griever explained that the help they received from others felt disproportionate. They explained that at first, they felt bombarded by calls from others to the point that it felt overwhelming. Later on, they noticed they weren’t hearing from anyone. “It was like crickets”.

Grief Counselors suggest that grievers and their supporters try to communicate and figure out what the right balance may be for them. Christopher Ciesla, Grief Counselor at Lightways states that in counseling, he works with grievers on how to advocate for themselves to have their needs met. He shares that at times he and the griever will “develop bullet points on how to teach their support members to support them better”. This helps, he explains, the griever to “talk to their partner or support system to guide them on what is most helpful, since most people are uncertain what to do”.

A note about Reaching Out to a Griever

“How are you doing?”:

Patrice Martin, Director of Grief and Integrative Therapies, was surprised to learn from grievers that this question can be difficult to answer. What is often a person’s attempt to reach out to a griever with support, can feel to a griever like a loaded question. “Grievers will ask us, ‘How do I answer that? Tell them the truth? Pretend I am doing better than I am?” says Martin. Grievers may not feel comfortable opening up at the time (or place) when this question is asked, or they may not feel that the person is genuinely interested in the true answer.

Martin encourages those who want to check in on a griever to consider the time and place of the check-in – where you are, what the person is doing, as well as your relationship with that person. “Instead of asking, “’ How are you doing?”, you may want to ask how their day is going or simply state to them that you wanted to check in, that you have been thinking of them and would love to connect. When asking, Martin cautions, “make sure you are sincerely open to hearing their honest answer.”

Reaching out for help from others can also be challenging for grievers. Partially because they may not know what they need, but also because reaching out comes with some risks for the griever, who may be feeling vulnerable, or worried about being a burden to others, or “ruining the mood” of the other person.

Permission to grieve and permission to not be OK.

The Grief Counselors report that grievers are often grateful to learn that what they are experiencing is common and natural. They share that they sometimes get the message from others (or themselves) that they shouldn’t be feeling the way they are feeling. Grievers share that they hear comments from others like “Are you still having a hard time?” or “Don’t be sad. They would want you to be happy.”

Grief Counselors at Lightways are big advocates for there not being “shoulds” around grief. There are so many factors that can affect how someone responds to a loss, which makes each person’s grief reaction to a death unique. There are all kinds of grief reactions, both positive and negative, and they are all OK.

Support and understanding, not silver lining

One of our grief clients, who experienced both the loss of a partner and a child shared her experience:

“I didn’t expect any words would make me feel better after these losses, but I was caught off guard that there were things people would say that made me feel worse. Some of my closest family members said to me, “Are you over it yet?” and “Don’t cry anymore, he is in heaven”. I don’t hold it against them – I pray they never know what these losses feel like, and I understand that it’s hard to watch our loved ones suffer. In hindsight, just their presence would have been enough, but I didn’t know that’s what I needed or wanted. And our grief is not something to be fixed.”

One of the Grief Counselors, Katie Thiesen, likes to share one of her favorite quotes by Haruki Murakami, “Pain is inevitable. Suffering is optional.” “Suffering”, she says, “is what happens when we have to hold our pain alone”. She shares that supporters often want to “rush to fix pain, yet the only way to ‘fix’ grief would be to have their person come back to life and be healthy. So instead, we need supporters who are willing to sit in the mess, in the depths of the pain of grief with the grievers. Not to ‘fix’ it, but to be with us in it. If people do not sit in it with one another, that often adds to the pain as it creates further isolation”.

Acknowledgement of pain of grief

Instead of attempting to get someone who is grieving to “think positively”, grievers say they appreciate it when someone instead acknowledges how hard this is for them. When they are able to just sit with them in their pain and not try to fix it. This is hard for many of us to do, and can make us feel helpless, or bring up our own discomfort or pain. This is why grievers often find comfort in talking with other grievers, who can empathize with them as they have felt similar ways. One griever shared how much she liked coming to the support group, “I love coming here because I don’t have to pretend that I’m OK. I can just share how I’m truly feeling”.

Opportunities to speak about their loved one

Our client also shared with us how important it is to have the opportunity to talk about her son.

“Towards the end of year two, people checked in on me less often. My friends and family talked less about (my son). And one of my greatest fears is that people will forget him.”

When asked what has been helpful, grievers often share how touched they were when someone remembered a special day or shared a memory about their person. Grief Counselors recommend that supporters consider what days or situations might be hard for the griever they are supporting and make sure to check in on them that day.

Counselors also recommend that grievers find ways to honor their person, either privately or in a group setting. At Lightways, the Grief Support Program offers a variety of different events and activities that give grievers a chance to pay tribute to their loved ones.

The Grief Support Program

The Grief Support Program at Lightways wants to make sure that the community knows that grief support is available to them, regardless of whether their loved one received hospice services. All the grief support services, including short-term counseling, support group, workshops, and special events, are available free of charge.

If you or anyone you know is interested in learning more, you can reach out to the Grief Support Program at 815-460-3282, [email protected] or Contact Lightways.

Through darkness, we bring light

Contact Lightways

Call 815.740.4104

Advance Care Planning Guide

Apr 10, 2026 | Light the Way Blog

A Complete Guide to Advance Care Planning:

How to Start the Conversation and Make Your Wishes Known

nurse holding medication and reviewing with patient

Talking about future healthcare decisions can feel uncomfortable, but avoiding the conversation can leave families overwhelmed and uncertain during some of life’s most difficult moments. Advance care planning is a thoughtful, proactive way to ensure your voice is heard, your values are honored, and your loved ones are supported when decisions matter most.

At its core, advance care planning is not just about paperwork, it is about having meaningful conversations, choosing someone you trust, and putting a plan in place that reflects what matters most to you.

What Is Advance Care Planning?

Advance care planning is the process of:

Reflecting on your personal values and healthcare preferences.
Talking with loved ones about your wishes.
Choosing someone to make decisions on your behalf if you cannot.
Completing legal documents that guide your care.

This process helps ensure that your care aligns with your goals, whether that means pursuing all available treatments or focusing on comfort and quality of life.

Why Advance Care Planning Is So Important

Without a clear plan in place:

Families may struggle to make decisions during emotional and stressful situations.
Loved ones may feel unsure or even conflicted about what you would want.
Care may not reflect your personal values or preferences.

Advance care planning provides clarity and peace of mind. It allows your loved ones to act with confidence, knowing they are honoring your wishes, not guessing them.

How to Start the Conversation

Starting the conversation is often the hardest step, but it does not have to be perfect. The goal is simply to begin.

Choose the Right Time
Look for a calm, comfortable setting, not during a crisis. Many people find it easier to start conversations:

After a family gathering.
Following a personal health experience or a family member’s health experience.
When helping a loved one navigate their own care decisions.

Start Small
You do not need to cover everything at once. Begin with simple, open-ended questions:

“What matters most to you if you were seriously ill?”
“What would quality of life look like for you?”
“Who would you trust to make decisions for you if you couldn’t?”

These questions open the door to deeper conversations over time.

Share Your Own Wishes
Talking about your own preferences first can help others feel more comfortable sharing theirs. It sets the tone for an honest, judgment-free conversation.

Focus on Values, Not Just Treatments
Advance care planning is about more than medical procedures. It is about understanding what matters most:

Independence vs. comfort
Being at home vs. in a hospital
Time with family vs. time engaged in aggressive treatment.
The level of care you desire when a healthcare crisis happens.

These values will guide decisions when they need to be made.

Choosing a Healthcare Power of Attorney (POA)

One of the most important steps in advance care planning is selecting a healthcare power of attorney (POA-HC), someone who can make medical decisions on your behalf if you are unable to.

What Makes a Good POA-HC?
Choose someone who:

Knows you well and understands your values.
Is willing to advocate for your wishes even when other family members may not agree.
Can stay calm under pressure.
Is comfortable communicating with medical professionals.

This person does not need to have medical knowledge, but they do need to be willing to speak on your behalf and honor your preferences.

Have the Conversation

Once you choose a POA-HC, talk with them openly about your wishes. Share what matters most to you and discuss specific scenarios if possible. The more they understand your values, the more confident they will feel making decisions.

Healthcare Power of Attorney
This names the person who will make medical decisions for you if you cannot, as well as give direction on your wishes for the disposition of your remains after death.

Financial Power of Attorney
This document allows a trusted individual to handle financial matters on your behalf if needed, such as paying routine bills. It may also be helpful to add your designated Power of Attorney (POA) to your bank accounts to simplify financial management. In addition, it is common to name a secondary POA to step in if the primary person is unable to fulfill these responsibilities.

What to Do After Completing Documents

Share copies with your POA and family members.
Provide copies to your healthcare providers.
Keep documents in an accessible place.
Review and update them as needed over time.

You may not need an attorney to complete these forms, but legal guidance can be helpful in more complex situations.

Making It an Ongoing Process

Advance care planning is not a one-time event. Your preferences may change as your health, life circumstances, or perspectives evolve.

Be sure to:

Revisit conversations regularly.
Update documents when needed, especially after a major life event such as a death or divorce.
Keep communication open with loved ones.

Even small updates can make a big difference in ensuring your wishes are honored.

A Gift to Your Loved Ones

Having these conversations may feel difficult, but they are truly a gift. Advance care planning:

Reduces stress and uncertainty for families, it can eliminate the question of what would they have wanted?
Strengthens communication and understanding.
Ensures your voice is heard—even if you cannot speak.
Prevents your family from having regrets after your death, which could complicate their grief process.

Taking the First Step

You do not need to have all the answers today. You do not need to complete everything at once. The most important step is simply to begin.

Start the conversation. Share what matters. Choose someone you trust.
Because when the time comes, your loved ones will be grateful they did not have to guess, they will know. It is recommended that you reach out to a financial advisor and tax attorney that specializes in advanced care planning for assistance and more information.

Additional Resources:
The Conversation Project – Advance Care Planning
Advance Directives– State of Illinois forms, laws and rules, resources
POLST Guidance for Individuals – State of Illinois

Through darkness, we bring light

Contact Lightways

Call 815.740.4104

Compassionate Inpatient Hospice Care

Mar 1, 2026 | Hospice Care, Light the Way Blog

Compassionate Inpatient Hospice Care

When It Is Needed Most

Choosing hospice care for a loved one is never easy, and at Lightways Hospice and Serious Illness Care, we understand the difficulty of that decision. We are honored you are here and taking the time to learn more about how we can support you and your family during this meaningful time. The Lightways Hospice and Serious Illness Care Inpatient Hospice Unit is designed to provide expert, round-the-clock medical care in a peaceful, home-like environment where comfort, dignity, and connection come first.

Our thoughtfully designed inpatient unit offers private rooms, welcoming common areas, and comforting amenities to support both patients and their loved ones. Our compassionate interdisciplinary team is dedicated to delivering the highest quality care, focused on comfort, symptom relief, and honoring the unique needs of every patient and family we serve.

What Is the Lightways Inpatient Hospice Unit?

The Lightways Hospice and Serious Illness Care Inpatient Hospice Unit provides short-term, acute hospice care for patients who need intensive symptom management or complex care that cannot be safely managed at home or their facility. This level of care is intended to stabilize symptoms, provide relief during periods of heightened need, or offer short-term respite for caregivers. While the unit is not designed for long-term residence, some patients do remain with us through the end of life, depending on their individual care needs.

Common Questions Families Ask

Who qualifies for inpatient hospice care?

Admission is based on medical needs, such as complex symptom management, short-term stabilization, or caregiver respite. Once symptoms are controlled, many patients return home or transition to another appropriate care setting.

Can my loved one stay here until the end of life?

Some patients do, while others transition back home or to another care environment. Each care plan is individualized and guided by the patient’s needs.

What does hospice care cost?

Hospice care is covered by Medicare, Medicaid, and most private insurance plans, excluding room and board. Our team will help you understand your coverage and answer any financial questions. When insurance does not apply, Lightways offers financial assistance for those who qualify, along with an affordable daily room and board rate.

What is respite care?

Respite care provides short-term stays of up to five days to give family caregivers a needed break, while ensuring their loved one continues to receive expert, compassionate care in a safe and supportive environment.

Visiting and Family Support

Families and loved ones are welcome 24 hours a day, seven days a week, because we know how important it is to be together. Overnight stays are welcome in the patient’s private room, and children of all ages may visit with adult supervision. We also welcome well-behaved pets, with prior approval and required documentation, as they are often an important source of comfort and connection.

Safety, Staffing, and Care

Our inpatient unit includes 24 private patient suites, each designed for comfort, care, and privacy. Registered nurses and nursing aides provide care 24/7, with daily physician rounds. Social workers, chaplains, and integrative therapists are available as needed to support both patients and families. Patients receive prescribed medications, medical treatments such as oxygen, IVs, and wound care, along with three meals each day.

How to Take the Next Step

If your loved one is already receiving Lightways Hospice and Serious Illness Care, contact your RN Case Manager to discuss eligibility for the inpatient unit. If your loved one is not currently in our service, you may contact the Lightways Hospice and Serious Illness Care Intake Team directly at 815.740.4104. Our intake line is available 24/7 and staffed by registered nurses who are ready to answer questions and guide you through the process with compassion and care.

At Lightways Hospice and Serious Illness Care, we are here to support you every step of the way, providing expert care, comfort, and reassurance when you need it most.

Through darkness, we bring light

Contact Lightways

Call 815.740.4104

Supporting Comfort at End of Life: How Hospice Medications Help

Feb 1, 2026 | Hospice Care, Light the Way Blog

Supporting Comfort at End of Life: How Hospice Medications Help

When a loved one enters hospice care, families often have many questions, especially about medications. It is completely natural to wonder what medications are being used, why they are needed, and what effect they may have. One of the most common concerns we hear is this: Do hospice comfort medications speed up death?

The short answer is no. Hospice medications are used to relieve distressing symptoms, improve quality of life, and help people remain as comfortable as possible during their end of life care. Their purpose is comfort—not to hasten death.

What Are Hospice Comfort Medications?

Comfort medications are prescribed to ease symptoms that commonly occur with serious or life-limiting illnesses. These may include pain, shortness of breath, anxiety, nausea, restlessness, or difficulty sleeping.

The goal of hospice care is not to cure illness, but to reduce suffering and support dignity and peace. Medications are one of many tools used to achieve that goal.

Common comfort medications may include:

Pain relievers
Anti-anxiety medications
Medications that ease breathing
Medications that reduce nausea, agitation, or restlessness

Each medication is carefully chosen based on the individual’s symptoms and needs and adjusted as those needs change.

Why the Misconception Exists

The idea that comfort medications hasten death often comes from misunderstanding how they work. Some medications, especially opioids or anti-anxiety medications—can cause drowsiness or more relaxed breathing as side effects. When families notice these changes, it can feel frightening and lead to worry that something harmful is happening.

Hospice clinicians start medications at the lowest effective dose and increase them slowly and carefully only when needed. The intent is always comfort and relief from suffering—not to shorten life.

How Hospice Teams Use Comfort Medications

Hospice care follows clear medical guidelines to ensure medications are used safely and appropriately. Care is always thoughtful and individualized, guided by these principles:

Symptom-driven care: Medications are given only when symptoms are present.
Individualized dosing: Every patient responds differently, and doses are tailored accordingly.
Ongoing assessment: Nurses regularly evaluate comfort, effectiveness, and side effects.
Team-based oversight: Physicians, nurses, and pharmacists work together to guide care.

When symptoms are managed, patients often rest more peacefully, breathe more easily, and experience less pain or anxiety—allowing for meaningful moments with loved ones.

Do Comfort Medications Speed Up Death?

Decades of research and hospice experience show that comfort medications do not hasten death when used appropriately. In fact, by easing pain, breathlessness, and anxiety, these medications can reduce physical stress on the body and help conserve energy.

The natural progression of illness—not medication—is what leads to the end of life. Hospice medications simply ensure that this time is lived with as much comfort and dignity as possible.

The Role of the Hospice Team

At Lightways, our hospice team takes time to explain every medication, answer questions, and listen to concerns. Families are encouraged to speak openly about their fears or uncertainties so we can provide reassurance and education.

Care plans are always flexible and can be adjusted at any time to reflect comfort needs, personal values, and family wishes.

Why Comfort Matters

At the heart of hospice care is the belief that everyone deserves to be comfortable, respected, and cared for with compassion at the end of life. Medications are just one part of that care, alongside emotional support, spiritual care, and integrative therapies such as massage, music, and other calming approaches.

Hospice comfort medications are not about speeding up death—they are about relieving suffering, easing distress, and supporting quality of life. Understanding their purpose can help families feel more confident and at peace with the care their loved one is receiving.

Questions About Hospice Medications

If you have questions or concerns about hospice medications, your Lightways care team is always here to listen, explain, and support you—every step of the way. You can contact us at 815.740.4104 for guidance or reassurance whenever you need it.

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Why an Interdisciplinary Team Matters in Hospice Care

Jan 29, 2026 | Hospice Care, Light the Way Blog

Why an Interdisciplinary Team Matters in Hospice Care

When someone is facing a life limiting illness, their needs extend far beyond medical care alone. Hospice care honors this reality by bringing together a team of professionalsand volunteers from many disciplines to care for the whole person. This model, known as an interdisciplinary team, is one of the reasons hospice care is so effective and meaningful for both patients and families.

Caring for the Whole Person

Hospice care is not just about managing symptoms; it is about honoring each individual’s physical, emotional, spiritual, and social needs. An interdisciplinary team works collaboratively to ensure that no part of a person’s experience is overlooked. Each team member brings unique expertise and perspective, creating a circle of care that surrounds patients and their loved ones with support, dignity, and compassion.

How Each Team Member Plays a Role

Physicians, Nurse Practitioners and Nurses

Hospice physicians and nurse practitioners oversee medical care, focusing on comfort and quality of life. They manage pain and symptoms, adjust medications, and guide care decisions in alignment with the patient’s goals and wishes.

Nurses are often the primary point of contact for patients and families. They provide hands-on care, monitor changes, educate caregivers, and offer reassurance during uncertain moments. Their presence brings both clinical expertise and compassionate support.

Certified Nursing Assistants (CNAs)

Certified Nursing Assistants provide essential personal care, including bathing, grooming, oral care, and assistance with feeding and movement. They help patients remain comfortable and dignified, and often form close, trusting relationships with those they serve.

Social Workers

Social workers support the emotional and practical needs of patients and families. They help navigate difficult conversations, provide counseling, connect families with resources, and assist with advance care planning and decision-making.

Chaplains

Chaplains provide spiritual and emotional support that respects each person’s beliefs, values, and traditions. Whether someone seeks comfort, meaning, or simply a listening presence, chaplains offer support without judgment or expectation.

Volunteers

Hospice volunteers bring the gift of presence. They may offer companionship, provide respite for caregivers, share music or conversation, or simply sit quietly with a patient. Their time and kindness make a profound difference.

Integrative Therapists

Integrative therapies such as massage, music, and aromatherapy can ease symptoms, reduce anxiety, and promote relaxation. These gentle therapies support emotional well-being and enhance comfort in meaningful ways.

Working Together for Better Care

What makes hospice care truly unique is not only the team, but also how the team works together. Interdisciplinary team members meet regularly, share insights, and coordinate care so that patients and families receive consistent, thoughtful support. This collaboration ensures that care is personalized and responsive as needs evolve.

Support for Families, Too

Hospice care recognizes that serious illness affects the entire family. The interdisciplinary team provides education, guidance, emotional support, and reassurance—before, during, and after a loved one’s death—helping families feel supported every step of the way.

Compassion in Action

An interdisciplinary team reflects hospice’s commitment to dignity, comfort, and compassion. By blending medical expertise, emotional support, spiritual care, and human connection, hospice care helps patients live as fully as possible and supports families through one of life’s most meaningful journeys.

Questions About Hospice Care?

If you or someone you love has questions about hospice care, an interdisciplinary hospice team is here to help—every step of the way.

Contact Lightways Hospice and Serious Illness Care today for more information at 815.740.4104 or click here.

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Contact Lightways

Call 815.740.4104

Bringing Light to Life’s Tender Moments: How Our Joyful Moments Program Makes a Lasting Impact

Dec 11, 2025 | Hospice Care, Light the Way Blog, Serious Illness Care

Bringing Light to Life’s Tender Moments: How Our Joyful Moments Program Makes a Lasting Impact

Lightways - daughter doing a puzzle with her mom

At Lightways Hospice and Serious Illness Care, we believe that hospice and palliative care is not only about comfort and support, it is also about honoring each person’s life, passions, and unique story.

Through our Joyful Moments Program, led by our Volunteer Services team, we create meaningful experiences that bring joy, connection, and dignity to our patients and their families. Whether it is fulfilling a long-held wish, creating a moment of celebration, or offering comfort through simple pleasures, these experiences remind us that even in the most challenging times, moments of joy still matter. Here are just a couple recent Joyful Moments that beautifully reflect the heart of our program.

A Trip Back to the Runway: An Airport Visit Rekindles a Lifetime of Memories

One adult patient spent much of his life working at an airport, surrounded by planes, travelers, and the energy of the runway. As his health declined, he longed to reconnect with that part of his life by watching planes take off once more. Our Joyful Moments team stepped in to make that wish come true.

Working with Clow Airport in Bolingbrook, we arranged a special visit for the patient and his family. The airport was chosen for its welcoming atmosphere, on-site restaurant, and aeronautical museum. A specific day and time were reserved exclusively for the family to enjoy lunch together while watching planes take off and land just outside the window.

To make the day even more special, the airport staff scheduled a private tour of the aeronautical museum. Surrounded by aircraft, aviation history, and the sounds of the runway, the patient spent the afternoon immersed in memories that brought him immense joy. For his family, it was a day of connection, seeing their loved one relive moments that were meaningful throughout his life.

Comfort and Connection Through Simple Pleasures

Not every Joyful Moment involves a big celebration. Sometimes, it is the small acts of care that bring the greatest comfort.

One of our adult patients living in a nursing facility finds comfort in music and puzzles, yet he has not always had the opportunity to enjoy them as often as he would like. To support him, our volunteer team assembled a personalized activity bag filled with simple comforts.

Inside was a pair of headphones so he could listen to his favorite music without disturbing others, along with puzzle books and games to keep his mind engaged. These thoughtful items offer him companionship, entertainment, and moments of calm, while also inviting opportunities to connect with staff or residents who may join in the activities.

This small act has made his days brighter, more meaningful, and filled with enjoyable moments that nurture his spirit.

Why Joy Matters

The Joyful Moments Program is a powerful reminder that hospice care is not about the end of life, it is about the quality of life. It is about honoring individuality, celebrating milestones, and creating memories that families can hold onto long after their loved one has passed.

Our volunteers make these experiences possible. Their compassion, creativity, and dedication ensure that every patient, adult, or child, can experience moments of joy, even in times of difficulty.

And for the families who witness these moments, the impact is immeasurable.

Joyful Moments Program Information

For more information about Joyful Moments or on how to become a volunteer, please contact our Volunteer Department at 815.740.4104 or email at [email protected].

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Contact Lightways

Call 815.740.4104

Supporting with Compassion: Essential Tips for Caregivers of Loved Ones in Hospice Care

Nov 20, 2025 | Light the Way Blog, Hospice Care, Lightways News

Supporting with Compassion: Essential Tips for Caregivers of Loved Ones in Hospice Care

Caring for a loved one in hospice care is one of the most meaningful—and often most challenging—acts of love a person can undertake.

Hospice care focuses on comfort, dignity, and quality of life for those nearing the end of life, but it also extends vital support to families and caregivers.

As a caregiver, you play a crucial role in ensuring your loved one feels safe, comfortable, and valued. Yet, it’s equally important to take care of yourself during this journey.

Below are practical and emotional tips to help you navigate this tender time with compassion and balance.

Understand What Hospice Care Provides

Hospice care is a team-based approach that addresses physical, emotional, and spiritual needs. The hospice team includes nurses, doctors, social workers, CNA’s, counselors, chaplains, integrative therapists, and volunteers — all working together to support both the patient and their family.

Any time you are feeling uncertain or frustrated, make sure to reach out to your hospice team. They are there to help you better understand your loved one’s needs. They are well-versed in common changes that can occur at the end of life, and how an illness can progress. Of course, make sure to also recognize that you are also an expert in what matters to your loved one. So, it’s important to follow your gut when something doesn’t feel right and share your gut feelings with your hospice team.

Tip: Take advantage of the hospice team’s expertise. Don’t hesitate to ask questions, request demonstrations (like how to administer medications), or seek clarification on care plans. You’re not alone in this — hospice professionals are there to guide and empower you.

Prioritize Comfort and Dignity

Your loved one’s comfort should always come first. Pay attention to signs of pain, restlessness, or fatigue and communicate these to your hospice care team.

Practical steps include:

Adjusting pillows or bedding to prevent discomfort.
Keeping their environment calm, familiar, and peaceful.
Playing soothing music or surrounding them with comforting scents. The Lightways Integrative Therapy Team is here to support you and your loved one.
Encouraging gentle conversation and quiet presence rather than constant activity.

Sometimes, the smallest gestures—holding a hand or softly speaking their name—bring the greatest comfort.

Listen and Be Present

In hospice care, presence often matters more than words. You don’t always have to “fix” things; simply being there can provide reassurance and peace.

Allow your loved one to express their feelings, fears, or memories. Listen with empathy and without judgment. Silence, too, can be sacred — offering a sense of calm connection when words aren’t needed.

Take Care of Yourself

Caregiving can be emotionally and physically exhausting. You can’t pour from an empty cup, so self-care is not selfish—it’s essential.

Try to:

Get enough rest whenever possible.
Eat nourishing meals and stay hydrated.
Accept help from friends, family, or hospice volunteers.
Take breaks to recharge — a short walk or a few minutes of quiet breathing can make a big difference.
Talk to your hospice social worker about what local resources you may qualify for, including respite, financial assistance, caregiver services, volunteers, support groups, and more.

Remember, caring for yourself allows you to care for your loved one with more patience and compassion.

Embrace Support and Resources

Lightways Hospice and Serious Illness Care offer a wide range of support services, including a virtual caregiver support group, grief counseling (in-person and virtual options available), social work services, and spiritual care for families before and after loss. Engaging in these services can help you process emotions and find strength in community.

If you or your family are struggling, reach out to our Grief Support Team— they are trained to provide emotional guidance during this time. Bi-lingual counselors are available. Our services are offered free of charge to anyone utilizing Lightways services and to anyone in the community who has experienced a loss. Our team can be reached directly at 815.460.3282 or by email at [email protected].

Celebrate Moments of Connection

Even in hospice care, there are opportunities for joy and meaning. Share favorite stories, look through old photos, enjoy a favorite song together, or simply sit in peaceful silence. These small, shared moments often become lasting memories of love and grace.

Caregiving can be made more difficult when you are also experiencing grief. Your loved one with a serious illness is experiencing many losses as they approach the end of their life. They may have increased fatigue, confusion, pain, agitation, or other symptoms that change who they are for you. You may also face physical separation from them due to changes in where they sleep or live. Caregivers are also at risk of experiencing financial losses, social losses, health challenges, and more.
Your hospice team not only cares for your loved one, but is also there for you for emotional support, the hospice social worker and chaplain can visit to help you navigate these feelings and challenges.

Remember that you are never alone. Hospice care exists not only to ease your loved one’s death but also to support you every step of the way. By balancing care for your loved one with care for yourself, you can help create a peaceful and meaningful experience in life’s final chapter.

Caregiver Information

For more information, contact Lightways Hospice and Serious Illness Care directly at 815.740.4104 or visit our contact us online.

Through darkness, we bring light

Contact Lightways

Call 815.740.4104

Facing the Holidays During Grief – Help for the Holidays

Nov 13, 2025 | Grief Support, Light the Way Blog, Lightways News

Facing the Holidays During Grief – Help for the Holidays

As the holiday season approaches, many grievers will experience uncertainty about how to approach the holidays, and how to cope with the increased grief reactions they experience during this time. Patrice Martin, Lightways Director of Grief and Integrative Therapies, can attest to an increase in calls to the Grief Support Program in the fall. “I have noticed that after the weather changes, and once holiday planning tends to begin, that we receive more calls from grievers who are at a loss, or are feeling an increase in the intensity of their grief.” Ms. Martin explains that often grievers are worried that they are having a “set back” in their grief. When really what they are experiencing is what she calls a “griefburst”.

A “griefburst” is how Grief Counselors at Lightways describe the experience many grievers have when they share that they feel like they are “doing okay”, and then suddenly, they experience an unexpected wave of grief. Although it is not always the case, griefbursts are often activated by a reminder of their loss – often a place, a time or date, an object, a situation, a song, etc.

This is what makes the holidays so challenging for many people. The holiday season is full of sensory experiences that focus on family togetherness and joyful experiences, often reminding us that our loved one is no longer able to join us. And these reminders are almost everywhere, at stores, in commercials, social media, etc. Grievers share that seeing these images often invoke feelings of sadness, anger, envy and loneliness. And many grievers dread having to “celebrate” the holidays when their loved one is unable to physically be there. For grievers that experienced the loss or other challenging aspects of their loved one’s illness during the holiday season, the holidays bring reminders of painful memories.

Because of this challenge, the Grief Counselors at Lightways have designed a “Help for the Holidays” workshop (one for adults and one for families with children), that helps grievers develop their plans for the holidays and tips on how to cope with the griefbursts that are likely to occur.

They created an acronym called “COMFORT” to help grievers remember these tips:

Connect

Grief is very isolating and can be more so during the holidays season when grievers see others with their loved ones. Grievers also report that being around others when they are grieving can feel more isolating, as they may be trying to mask their grief for fear of upsetting or worrying others in their family. This is why it’s important for grievers to identify who and what they can connect with during the holidays. Some grievers share that connecting with other grievers who understand their grief can be very helpful. As well as those in their support system, they can be honest about how they are feeling, or who are open to talking about their loved one with them. Some grievers also find comfort in connecting with their spiritual community, who sometimes offer opportunities to honor their person during the holidays such as services named “Blue Christmas” or “Longest Night”. The Lights of Love Memorial Tribute is also a way many families gather to honor their person before the holiday season begins.

Offer yourself permission to opt out

Some grievers decide to opt out of holiday festivities, or change their holiday traditions, if they are too painful for them to do. This is more difficult for families that have children who are counting on some of the traditions.

Make a Plan A and a Plan B

“I have found that those who try to pretend like nothing is different have more difficulty during the holidays than those who do some planning ahead of time”, says Ms. Martin.

We encourage grievers to make a Plan A and a Plan B, to allow themselves options on the days of their holiday activities. This may include having an exit plan, like driving separately to the activity, giving yourself a break from the activity, or rescheduling the activity for another day.

Find a way to honor

Many grievers will decide to re-evaluate their rituals – and see how they can include their person in a different way (i.e. setting a place setting for them, lighting a candle in their honor, creating a special decoration or ornament to express your favorite memories. One idea Ms. Martin shares is to gather as a family to make a paper link decoration that includes special memories, or to make a special jar that everyone can add their memories to. Below are some questions to help families spark discussions around their favorite memories.

What are some memories of your person during the holidays?
What was one of the best gifts you got from your person?
What was your favorite tradition or part of the holidays?
What were some of the places you went to with your person during the holidays?

Other ideas: Incorporation of your person’s favorite dish in the meal, ordering a Memorial Bear from Lightways or donating money or time to an important cause in your loved one’s name.

Okay to Feel Joy

For some grievers, this feels wrong. Counselors often hear from grievers that whenever they experience joy during their grief process, they quickly feel guilty for feeling joy. Counselors share that grief includes a wide array of emotions, both negative and positive. and make sure to remind grievers that feeling joy after their loss doesn’t mean that they don’t love their person, or that they are forgetting them. Grievers all need to come up for air from the heavy and painful feelings of grief and allow themselves some moments of joy when they happen.

Rest

Counselors remind grievers that grief is exhausting – physically, emotionally, mentally, and socially. Self-care is such an important part of coping with grief. Ms. Martin explains that “self-care is anything that tends to a person’s body, mind or soul.” This may be making time for extra rest or time to pause and reflect during the busy holiday season. Many grievers find taking walks outside to be helpful and a way to help them recharge and reset.

Triggers Happen

As we said before, griefbursts are often “triggered” by something. So, grief counselors encourage grievers to plan for triggers first by identifying which holidays or parts of the holiday season they traditionally celebrate and thinking about what aspects of each holiday could be the most triggering to their grief. Examples of common triggers include specific traditions that your person was involved in (i.e. carving the turkey, saying a prayer, cooking a special dish, giving a gift, decorating a tree, counting down at New Years, etc) or special places that you visit during the season. Since triggers are often sensory experiences, grievers are encouraged to think of different sounds, smells, sights, tastes, and touches that may evoke a specific memory.

Once a griever identifies the possible triggers, Counselors encourage grievers to think about how they can make sure to have the support, respite, rest or ways to express themselves to cope. The goal is not to prevent triggers altogether, but to have a plan for when they happen. Counselors caution grievers, however, that there will still be unexpected grief bursts that take them by surprise, as we often do not realize the extent of our losses until they are gone.

Grief Support & Workshops

If you are interested in speaking with a Grief Counselor further about how you can cope during the holidays, you can reach out to the Grief Support Program at Lightways at 815-460-3282, [email protected] or contact us online.

Holidays Workshop for Adults
To register for the Virtual Help for the Holidays Workshop for Adults on November 20th – click here.

Help for the Holidays Workshop for families with children
To register for the Virtual Help for the Holidays Workshop for families with children on November 10th – click here.

Memorial Bears information

Lights of Love Memorial Tribute and Tree Lighting Ceremony

Through darkness, we bring light

Contact Lightways

Call 815.740.4104