A hospice dietitian plays a vital role in enhancing the quality of life for patients receiving care, whether at home or in a facility. Dietitians can assist in developing individualized nutrition plans tailored to the patient’s specific medical conditions, treatment goals, and personal preferences, particularly addressing symptoms like loss of appetite and nausea.

With many Americans living with chronic diseases, the demand for such specialized nutrition support is increasing. Preferences are shifting towards home-based care, making the role of dietitians even more critical. Dietitians can focus on improving patients’ well-being by managing their nutritional intake throughout the various stages of chronic illness rather than just at the end of life.

What challenges do patients and families face in dietary management during hospice care?

• Changes in Appetite: Patients may experience reduced appetite or sudden changes in their taste preferences, making it difficult to maintain proper nutritional intake.
• Medication Side Effects: Many patients face gastrointestinal issues, like nausea or constipation, due to medications or their illness, further complicating their ability to consume food.
• Psychological Stress: The emotional toll of end-of-life care can affect willingness to eat, leading families to feel guilty or uncertain about food choices.

What are the ethical considerations regarding nutrition and feeding in end-of-life care?

The ethical considerations regarding nutrition and feeding in end-of-life care focus primarily on balancing adequate nutrition with the overall quality of life for the patient.

In this sensitive phase, adhering to guidelines such as those from the National Institute for Health and Care Excellence are used, commonly deferring to basic needs of hydration and tolerance to foods.
Many patients at this stage may not feel hunger, and providing such interventions can sometimes interfere with the comfort-focused goals of palliative care and/or the patient’s safety.

The emphasis should be on enhancing the patient’s well-being rather than just prolonging life. Therefore, individualized care plans tailored to each patient’s wishes and preferences surrounding hydration and nutrition become necessary.

Dietitians are important members of the hospice care team, providing essential nutritional guidance that respects the diverse needs and desires of patients facing the end of life.

Interdisciplinary collaboration, sensitivity to ethical dilemmas, and dedication to enhancing comfort highlight the profound impact dietitians have in these settings, ultimately enriching the journey of patients and their families through compassionate and tailored nutrition care.

About the Author

Elizabeth DeAvilla is a Registered Dietitian based out of the northwest suburbs of Chicago. She earned her bachelor’s degree in nutrition and dietetics from Northern Illinois University and her master’s in business administration from Dominican University. She is currently pursuing a Ph.D. in Human Performance at Concordia University Chicago. She has worked within the hospice-specific population since June of 2023, following finding a passion for treating and educating families in an inpatient setting. Elizabeth has worked in every facet of nutrition, from critical care medicine to food service and behavioral health to community organizations such as Head Start. Her passions include teaching in the settings of community organizations, schools, hospitals, and anywhere else where the science of nutrition and food is found.

When faced with a serious illness, patients and their families often feel overwhelmed by the medical system, symptom burden, and emotional stress. In such moments, Serious Illness Care or palliative care can be a powerful, supportive ally—yet it remains one of the most misunderstood services in healthcare. This blog explores what palliative care truly is, its benefits, why early enrollment matters, and the common myths that surround it.

What Is Serious Illness Care (Palliative Care)?

Serious Illness Care or Palliative care is specialized medical care focused on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. Its goal is to improve quality of life for both the patient and their family.

This type of care is provided by a team of nurses, social workers, chaplains, and other specialists who work alongside a patient’s existing healthcare providers. Serious Illness Care can be offered at any stage of a serious illness and can be provided with curative treatments.

Why Early Enrollment Is So Important

A common misconception is that palliative care is only for the very end of life. In reality, the earlier it’s introduced, the more beneficial it can be.

Early enrollment means:

• More time to manage symptoms effectively
• More support during difficult treatments
• Better emotional well-being throughout the illness journey
• Improved ability to make informed decisions over time

Studies show that patients who receive palliative care early often live longer, with better quality of life.

Serious Illness Care is about living well, even while facing serious illness. It empowers patients and families, provides relief, and aligns treatment with what matters most to the individual. Far from being a last resort, it is a proactive approach to whole-person care—one that everyone deserves to understand and consider.

When faced with a chronic illness, patients and their families often encounter terms like hospice and serious illness care (palliative care). While both are forms of care focused on comfort and quality of life, they have distinct purposes, goals, and timing. In this blog, we will dive into the differences between hospice and palliative care to help you understand how each approach can support you or a loved one during a challenging time.

What is Serious Illness Care (Palliative Care)?

Serious Illness Care is a specialized form of medical care aimed at improving the quality of life for people living with serious or chronic illnesses. It focuses on symptom management, pain relief related to the illness, and emotional support — all with the goal of making the patient feel as comfortable as possible, regardless of whether the illness is terminal or not.

What is Hospice Care?

Hospice care is specifically designed for patients who are nearing the end of life, typically when they are expected to live six months or less. The focus of hospice care shifts to comfort and dignity in the final stages of life, and it is provided when curative treatments are no longer an option or have been chosen to be discontinued.

Key Differences Between Hospice and Palliative Care

Which Care is Right for You?

The choice between hospice and serious illness care (palliative care) depends on your loved one’s health status and goals. Serious Illness Care is a great option if you are looking for relief from symptoms but still wish to pursue curative treatment. It can be provided at any time during an illness. On the other hand, hospice care is designed for those whose focus shifts away from curing the illness and toward ensuring comfort and dignity in their final days.

Both forms of care aim to improve the patient’s quality of life, but hospice care is more focused on the end-of-life stage, while palliative care can begin earlier in a person’s illness journey. If you are unsure about which type of care is best, speak with your healthcare provider. They can guide you through your options based on your or your loved one’s specific needs. Or please call us and we can help you talk to your physician.

Understanding the difference between hospice and serious illness care can help you make an informed decision about the type of support you or your loved one needs. Whether you are seeking symptom relief during treatment or focusing on comfort and support during the final stages of life, both hospice and serious illness care are designed to ensure that patients receive the care they deserve — tailored to their individual needs and wishes.