A Complete Guide to Advance Care Planning:

How to Start the Conversation and Make Your Wishes Known

nurse holding medication and reviewing with patient

Talking about future healthcare decisions can feel uncomfortable, but avoiding the conversation can leave families overwhelmed and uncertain during some of life’s most difficult moments. Advance care planning is a thoughtful, proactive way to ensure your voice is heard, your values are honored, and your loved ones are supported when decisions matter most.

At its core, advance care planning is not just about paperwork, it is about having meaningful conversations, choosing someone you trust, and putting a plan in place that reflects what matters most to you.

What Is Advance Care Planning?

Advance care planning is the process of:

  • Reflecting on your personal values and healthcare preferences.
  • Talking with loved ones about your wishes.
  • Choosing someone to make decisions on your behalf if you cannot.
  • Completing legal documents that guide your care.

This process helps ensure that your care aligns with your goals, whether that means pursuing all available treatments or focusing on comfort and quality of life.

Why Advance Care Planning Is So Important

Without a clear plan in place:

  • Families may struggle to make decisions during emotional and stressful situations.
    Loved ones may feel unsure or even conflicted about what you would want.
  • Care may not reflect your personal values or preferences.

Advance care planning provides clarity and peace of mind. It allows your loved ones to act with confidence, knowing they are honoring your wishes, not guessing them.

How to Start the Conversation

Starting the conversation is often the hardest step, but it does not have to be perfect. The goal is simply to begin.

Choose the Right Time
Look for a calm, comfortable setting, not during a crisis. Many people find it easier to start conversations:

  • After a family gathering.
  • Following a personal health experience or a family member’s health experience.
  • When helping a loved one navigate their own care decisions.

Start Small
You do not need to cover everything at once. Begin with simple, open-ended questions:

  • “What matters most to you if you were seriously ill?”
  • “What would quality of life look like for you?”
  • “Who would you trust to make decisions for you if you couldn’t?”

These questions open the door to deeper conversations over time.

Share Your Own Wishes
Talking about your own preferences first can help others feel more comfortable sharing theirs. It sets the tone for an honest, judgment-free conversation.

Focus on Values, Not Just Treatments
Advance care planning is about more than medical procedures. It is about understanding what matters most:

  • Independence vs. comfort
  • Being at home vs. in a hospital
  • Time with family vs. time engaged in aggressive treatment.
  • The level of care you desire when a healthcare crisis happens.

These values will guide decisions when they need to be made.

Choosing a Healthcare Power of Attorney (POA)

 One of the most important steps in advance care planning is selecting a healthcare power of attorney (POA-HC), someone who can make medical decisions on your behalf if you are unable to.

What Makes a Good POA-HC?
Choose someone who:

  • Knows you well and understands your values.
  • Is willing to advocate for your wishes even when other family members may not agree.
  • Can stay calm under pressure.
  • Is comfortable communicating with medical professionals.

This person does not need to have medical knowledge, but they do need to be willing to speak on your behalf and honor your preferences.

Have the Conversation

Once you choose a POA-HC, talk with them openly about your wishes. Share what matters most to you and discuss specific scenarios if possible. The more they understand your values, the more confident they will feel making decisions.

Healthcare Power of Attorney
This names the person who will make medical decisions for you if you cannot, as well as give direction on your wishes for the disposition of your remains after death.

Financial Power of Attorney
This document allows a trusted individual to handle financial matters on your behalf if needed, such as paying routine bills. It may also be helpful to add your designated Power of Attorney (POA) to your bank accounts to simplify financial management. In addition, it is common to name a secondary POA to step in if the primary person is unable to fulfill these responsibilities.

What to Do After Completing Documents

  • Share copies with your POA and family members.
  • Provide copies to your healthcare providers.
  • Keep documents in an accessible place.
  • Review and update them as needed over time.

You may not need an attorney to complete these forms, but legal guidance can be helpful in more complex situations.

Making It an Ongoing Process

Advance care planning is not a one-time event. Your preferences may change as your health, life circumstances, or perspectives evolve.

Be sure to:

  • Revisit conversations regularly.
  • Update documents when needed, especially after a major life event such as a death or divorce.
  • Keep communication open with loved ones.

Even small updates can make a big difference in ensuring your wishes are honored.

A Gift to Your Loved Ones

Having these conversations may feel difficult, but they are truly a gift. Advance care planning:

  • Reduces stress and uncertainty for families, it can eliminate the question of what would they have wanted?
  • Strengthens communication and understanding.
  • Ensures your voice is heard—even if you cannot speak.
  • Prevents your family from having regrets after your death, which could complicate their grief process.

Taking the First Step

You do not need to have all the answers today. You do not need to complete everything at once. The most important step is simply to begin.

Start the conversation. Share what matters. Choose someone you trust.
Because when the time comes, your loved ones will be grateful they did not have to guess, they will know. It is recommended that you reach out to a financial advisor and tax attorney that specializes in advanced care planning for assistance and more information.

Additional Resources:
The Conversation Project – Advance Care Planning
Advance Directives– State of Illinois forms, laws and rules, resources
POLST Guidance for IndividualsState of Illinois