Supporting Children Through Grief: Before and After a Loss

In honor of Children’s Grief Awareness Month, the Grief Support and Child Life Teams at Lightways Hospice and Serious Illness Care wanted to share some important tips on the unique considerations to be made when supporting a child before or after the death of a loved one.

Wife hugging husband

The Importance of Telling the Truth

Many parents and caregivers have expressed reluctance and confusion about what they should be telling their child about a loved one’s life-limiting illness. Some of the biggest fears we hear are their concern that they will upset or scare their child. Other parents fear that they will say the wrong thing, or get emotional when they share difficult news, and thus, will upset the child more.

The Grief Support Team at Lightways encourages parents and caregivers to tell their child the truth about what is happening.

Reasons for telling the truth

  • If a child learns about difficult news from their trusted adult, they learn that they can trust what their adult says.
  • The child may have already learned the truth, or sensed the truth, and will have the opportunity to process it with others.
  • With no explanation, the child may fill in the blanks and create a false narrative.
  • It provides reassurance that it wasn’t their fault.
  • They get the message that it is OK to talk and express feelings about it.
  • Talking about death and dying openly, helps us to reduce the stigma overall.

What to Consider Before Talking with your Child

Lightways Child Life Specialists provide some tips on how parents and caregivers can deliver difficult news in a way that meets their child’s needs at that moment.

This often begins with what we call “Setting the Stage”. Deciding who will be telling the child the news, what location you will share the information, and when the news will be shared. Staff recommend that the child hears the news from a trusted adult, in a safe and comfortable place, and at a time that is ideal to allow the child to process the information they have heard afterward. They also encourage adults to imagine how they think the child may react and have the appropriate comfort items available to them.

Finally, the Child Life Specialists team suggests that the conversation begins with the trusted adult saying “I have something important I need to tell you” to give the child time to orient themselves to a serious conversation.

What’s Important to Share?

Parents often ask what kind of information they should share with a child when someone in the family has a life limiting illness, is nearing death or has died.

The best guideline is to make sure you provide the child with honest information in a way that matches the child’s developmental understanding. For example, it’s important, especially with younger children, that you do not use euphemisms (i.e. “grandpa is sick”, “your mom passed away”, “we lost grandpa”) but rather clear and concrete language (such as “grandpa has cancer”, “your mom died”).

In addition, to keeping the news simple, let the child’s questions guide how much information is shared. Some children have multiple questions, and some will not have any questions. This is why it’s important to also check for understanding by asking them their thoughts or questions. For many young children, this is not a onetime conversation, as it takes some time for them to understand what has happened.

The Six “Cs”

The team also recommends that the trusted adult consider the six “Cs” when explaining an illness to a child. Each of these “Cs” address common thoughts or questions that a child may be uncertain about.

– What is it CALLED?
– Did I CAUSE it?
– Can I CATCH it?
– Can we CURE it?
– Who will take CARE of me?
– Will they be COMFORTABLE?

Tips on Supporting the Child

Validate and normalize their reactions

It’s important for children to feel as though any reaction to this news is acceptable. That includes tears, anger, relief, or confusion. The Child Life Specialists team suggests that children be reassured that each of us can have a different reaction and that there is no “right” way to respond.

It’s common for children to do what our Child Life Specialist, Rachael Miller, describes as “Puddle Jumping”. Miller explains, “While adults may feel as though they are caught in an ocean of grief; children often experience grief differently by moving in and out of their emotions.” Miller explains, rather than remaining submerged in an ocean, puddle jumping “allows children to step into and out of difficult emotions as they process what is happening”. Miller reassures parents and caregivers that when a child steps away from a difficult conversation, it does not mean they are uninterested or unaffected by what they have heard. Rather, they are communicating, “This is all I can take in right now. I need time to process this in my own way.”

Prepare them for what to expect next

If the child has just learned of a serious illness, the team encourages the adult to help the child understand things that they might observe when they see their person next (i.e. fatigue, oxygen, frailty, confusion, etc.). Miller shares, “unfamiliar medical equipment and changes in a loved one’s appearance or behavior can be scary. Explaining these changes and purposes for medical equipment can help ease fears.” Miller also emphasizes the importance of parents and caregivers preparing the child prior to a memorial service, so they know what to expect, feel supported, and are better equipped to navigate the experience.

Inform School Personnel

The team recommends that the parent or caregiver also share with the child’s school that they have just learned difficult news and help the school determine a support person that the child can reach out to, and that can check in on the child. This can also help the teachers develop accommodations to assist the child that may have trouble concentrating at school or completing homework. Counselors have seen situations in which the school did not learn about a significant event until later, when the child’s grades reduced suddenly.

Model Healthy Grief Responses

One of the biggest predictors of how a child grieves is how their parents or caregivers are coping with their grief. If a child sees that others around them are not showing or sharing their feelings about the loss, then they often follow suit. Counselors encourage adults to model healthy expressions of grief in front of children (i.e. “Daddy is feeling sad and missing mommy”). This gives children permission to share their reactions.

Consider “Secondary Losses”

“Secondary Losses” are losses that someone experiences because of the loss of their person. Children can experience numerous secondary losses, especially when a significant person dies (i.e. changes in household, moving to a new home or school, changes in child care, grieving parent, etc). It is often these losses that cause a child stress and disruption.

Talk about their Person

After someone dies, we mistakenly avoid talking about that person to try to prevent “upsetting” those who are grieving. In fact, most grievers find comfort in being able to talk about their person. This is also true for children. Children enjoy drawing pictures, sharing stories and memories, and learning new things about their person.

Resources We Love

Resources & Reading – Judi’s House
Judi’s House has great information about a child’s developmental understanding of death, common grief reactions and recommendation of children’s books.

Grief Support Resource Library – NACG
The National Alliance for Children’s Grief has a comprehensive collection of resources, including tips on explaining a death to a child, as well as supporting a child after a traumatic death. Information is also available in Spanish.

Grief Resources for Kids, Parents, & Supporters | Dougy Center
The Dougy Center also has an extensive library of resources in multiple languages, and allow professionals to print out “Tip Sheets” to share with parents and caregivers.

When Dinosaurs Die by Laurie Krasny Brown
This children’s book is useful when explaining death to a child. The Grief Support Team likes that this book addresses all types of death.

The Invisible String by Patrice Karst
This book tells a great story of how we stay connected to our loved ones through all types of separations, changes and absences.

How to Reach Out for Support

Lightways Grief Support Program is open to anyone that has experienced the death of a loved one and includes services for children and their families. This includes grief counseling, special family events throughout the year to provide children with opportunities to honor their loved one and a summer kid’s camp.

Contact us for more information by:

Calling 815-460-3282
Emailing [email protected]
Completing a contact form