Supporting with Compassion: Essential Tips for Caregivers of Loved Ones in Hospice Care

Supporting with Compassion: Essential Tips for Caregivers of Loved Ones in Hospice Care

Supporting with Compassion: Essential Tips for Caregivers of Loved Ones in Hospice Care

Breast Cancer support ribbon

Caring for a loved one in hospice care is one of the most meaningful—and often most challenging—acts of love a person can undertake.

Hospice care focuses on comfort, dignity, and quality of life for those nearing the end of life, but it also extends vital support to families and caregivers.

As a caregiver, you play a crucial role in ensuring your loved one feels safe, comfortable, and valued. Yet, it’s equally important to take care of yourself during this journey.

Below are practical and emotional tips to help you navigate this tender time with compassion and balance.

Understand What Hospice Care Provides

Hospice care is a team-based approach that addresses physical, emotional, and spiritual needs. The hospice team includes nurses, doctors, social workers, CNA’s, counselors, chaplains, integrative therapists, and volunteers — all working together to support both the patient and their family.

Any time you are feeling uncertain or frustrated, make sure to reach out to your hospice team. They are there to help you better understand your loved one’s needs. They are well-versed in common changes that can occur at the end of life, and how an illness can progress. Of course, make sure to also recognize that you are also an expert in what matters to your loved one. So, it’s important to follow your gut when something doesn’t feel right and share your gut feelings with your hospice team.

Tip: Take advantage of the hospice team’s expertise. Don’t hesitate to ask questions, request demonstrations (like how to administer medications), or seek clarification on care plans. You’re not alone in this — hospice professionals are there to guide and empower you.

Prioritize Comfort and Dignity

Your loved one’s comfort should always come first. Pay attention to signs of pain, restlessness, or fatigue and communicate these to your hospice care team.

Practical steps include:

  • Adjusting pillows or bedding to prevent discomfort.
  • Keeping their environment calm, familiar, and peaceful.
  • Playing soothing music or surrounding them with comforting scents. The Lightways Integrative Therapy Team is here to support you and your loved one.
  • Encouraging gentle conversation and quiet presence rather than constant activity.

Sometimes, the smallest gestures—holding a hand or softly speaking their name—bring the greatest comfort.

Listen and Be Present

In hospice care, presence often matters more than words. You don’t always have to “fix” things; simply being there can provide reassurance and peace.

Allow your loved one to express their feelings, fears, or memories. Listen with empathy and without judgment. Silence, too, can be sacred — offering a sense of calm connection when words aren’t needed.

Take Care of Yourself

Caregiving can be emotionally and physically exhausting. You can’t pour from an empty cup, so self-care is not selfish—it’s essential.

Try to:

  • Get enough rest whenever possible.
  • Eat nourishing meals and stay hydrated.
  • Accept help from friends, family, or hospice volunteers.
  • Take breaks to recharge — a short walk or a few minutes of quiet breathing can make a big difference.
  • Talk to your hospice social worker about what local resources you may qualify for, including respite, financial assistance, caregiver services, volunteers, support groups, and more.

Remember, caring for yourself allows you to care for your loved one with more patience and compassion.

Embrace Support and Resources

Lightways Hospice and Serious Illness Care offer a wide range of support services, including a virtual caregiver support group, grief counseling (in-person and virtual options available), social work services, and spiritual care for families before and after loss. Engaging in these services can help you process emotions and find strength in community.

If you or your family are struggling, reach out to our Grief Support Team— they are trained to provide emotional guidance during this time. Bi-lingual counselors are available. Our services are offered free of charge to anyone utilizing Lightways services and to anyone in the community who has experienced a loss. Our team can be reached directly at 815.460.3282 or by email at [email protected].

Celebrate Moments of Connection

Even in hospice care, there are opportunities for joy and meaning. Share favorite stories, look through old photos, enjoy a favorite song together, or simply sit in peaceful silence. These small, shared moments often become lasting memories of love and grace.

Caregiving can be made more difficult when you are also experiencing grief. Your loved one with a serious illness is experiencing many losses as they approach the end of their life. They may have increased fatigue, confusion, pain, agitation, or other symptoms that change who they are for you. You may also face physical separation from them due to changes in where they sleep or live. Caregivers are also at risk of experiencing financial losses, social losses, health challenges, and more.
Your hospice team not only cares for your loved one, but is also there for you for emotional support, the hospice social worker and chaplain can visit to help you navigate these feelings and challenges.

Remember that you are never alone. Hospice care exists not only to ease your loved one’s death but also to support you every step of the way. By balancing care for your loved one with care for yourself, you can help create a peaceful and meaningful experience in life’s final chapter.

Caregiver Information

For more information, contact Lightways Hospice and Serious Illness Care directly at 815.740.4104 or visit our contact us online.

 

Facing the Holidays During Grief – Help for the Holidays

Facing the Holidays During Grief – Help for the Holidays

Facing the Holidays During Grief – Help for the Holidays

Breast Cancer support ribbon

As the holiday season approaches, many grievers will experience uncertainty about how to approach the holidays, and how to cope with the increased grief reactions they experience during this time. Patrice Martin, Lightways Director of Grief and Integrative Therapies, can attest to an increase in calls to the Grief Support Program in the fall. “I have noticed that after the weather changes, and once holiday planning tends to begin, that we receive more calls from grievers who are at a loss, or are feeling an increase in the intensity of their grief.” Ms. Martin explains that often grievers are worried that they are having a “set back” in their grief. When really what they are experiencing is what she calls a “griefburst”.

A “griefburst” is how Grief Counselors at Lightways describe the experience many grievers have when they share that they feel like they are “doing okay”, and then suddenly, they experience an unexpected wave of grief. Although it is not always the case, griefbursts are often activated by a reminder of their loss – often a place, a time or date, an object, a situation, a song, etc.

This is what makes the holidays so challenging for many people. The holiday season is full of sensory experiences that focus on family togetherness and joyful experiences, often reminding us that our loved one is no longer able to join us. And these reminders are almost everywhere, at stores, in commercials, social media, etc. Grievers share that seeing these images often invoke feelings of sadness, anger, envy and loneliness. And many grievers dread having to “celebrate” the holidays when their loved one is unable to physically be there. For grievers that experienced the loss or other challenging aspects of their loved one’s illness during the holiday season, the holidays bring reminders of painful memories.

Because of this challenge, the Grief Counselors at Lightways have designed a “Help for the Holidays” workshop (one for adults and one for families with children), that helps grievers develop their plans for the holidays and tips on how to cope with the griefbursts that are likely to occur.

They created an acronym called “COMFORT” to help grievers remember these tips:

Connect

Grief is very isolating and can be more so during the holidays season when grievers see others with their loved ones. Grievers also report that being around others when they are grieving can feel more isolating, as they may be trying to mask their grief for fear of upsetting or worrying others in their family. This is why it’s important for grievers to identify who and what they can connect with during the holidays. Some grievers share that connecting with other grievers who understand their grief can be very helpful. As well as those in their support system, they can be honest about how they are feeling, or who are open to talking about their loved one with them. Some grievers also find comfort in connecting with their spiritual community, who sometimes offer opportunities to honor their person during the holidays such as services named “Blue Christmas” or “Longest Night”. The Lights of Love Memorial Tribute is also a way many families gather to honor their person before the holiday season begins.

Offer yourself permission to opt out

Some grievers decide to opt out of holiday festivities, or change their holiday traditions, if they are too painful for them to do. This is more difficult for families that have children who are counting on some of the traditions.

Make a Plan A and a Plan B

“I have found that those who try to pretend like nothing is different have more difficulty during the holidays than those who do some planning ahead of time”, says Ms. Martin.

We encourage grievers to make a Plan A and a Plan B, to allow themselves options on the days of their holiday activities. This may include having an exit plan, like driving separately to the activity, giving yourself a break from the activity, or rescheduling the activity for another day.

Find a way to honor

Many grievers will decide to re-evaluate their rituals – and see how they can include their person in a different way (i.e. setting a place setting for them, lighting a candle in their honor, creating a special decoration or ornament to express your favorite memories. One idea Ms. Martin shares is to gather as a family to make a paper link decoration that includes special memories, or to make a special jar that everyone can add their memories to. Below are some questions to help families spark discussions around their favorite memories.

  • What are some memories of your person during the holidays?
  • What was one of the best gifts you got from your person?
  • What was your favorite tradition or part of the holidays?
  • What were some of the places you went to with your person during the holidays?

Other ideas: Incorporation of your person’s favorite dish in the meal, ordering a Memorial Bear from Lightways or donating money or time to an important cause in your loved one’s name.

Okay to Feel Joy

For some grievers, this feels wrong. Counselors often hear from grievers that whenever they experience joy during their grief process, they quickly feel guilty for feeling joy. Counselors share that grief includes a wide array of emotions, both negative and positive. and make sure to remind grievers that feeling joy after their loss doesn’t mean that they don’t love their person, or that they are forgetting them. Grievers all need to come up for air from the heavy and painful feelings of grief and allow themselves some moments of joy when they happen.

Rest

Counselors remind grievers that grief is exhausting – physically, emotionally, mentally, and socially. Self-care is such an important part of coping with grief. Ms. Martin explains that “self-care is anything that tends to a person’s body, mind or soul.” This may be making time for extra rest or time to pause and reflect during the busy holiday season. Many grievers find taking walks outside to be helpful and a way to help them recharge and reset.

Triggers Happen

As we said before, griefbursts are often “triggered” by something. So, grief counselors encourage grievers to plan for triggers first by identifying which holidays or parts of the holiday season they traditionally celebrate and thinking about what aspects of each holiday could be the most triggering to their grief. Examples of common triggers include specific traditions that your person was involved in (i.e. carving the turkey, saying a prayer, cooking a special dish, giving a gift, decorating a tree, counting down at New Years, etc) or special places that you visit during the season. Since triggers are often sensory experiences, grievers are encouraged to think of different sounds, smells, sights, tastes, and touches that may evoke a specific memory.

Once a griever identifies the possible triggers, Counselors encourage grievers to think about how they can make sure to have the support, respite, rest or ways to express themselves to cope. The goal is not to prevent triggers altogether, but to have a plan for when they happen. Counselors caution grievers, however, that there will still be unexpected grief bursts that take them by surprise, as we often do not realize the extent of our losses until they are gone.

Grief Support & Workshops

If you are interested in speaking with a Grief Counselor further about how you can cope during the holidays, you can reach out to the Grief Support Program at Lightways at 815-460-3282, [email protected] or contact us online.

Holidays Workshop for Adults
To register for the Virtual Help for the Holidays Workshop for Adults on November 20th – click here.

Help for the Holidays Workshop for families with children
To register for the Virtual Help for the Holidays Workshop for families with children on November 10th – click here.

Memorial Bears information

Lights of Love Memorial Tribute and Tree Lighting Ceremony

The Heart of Compassion: The Role of Chaplains in Hospice and Palliative Care

The Heart of Compassion: The Role of Chaplains in Hospice and Palliative Care

The Heart of Compassion: The Role of Chaplains in Hospice and Palliative Care

Chaplains at Lightways Hospice
When people hear the word chaplain, they often think of religion. But in hospice care, chaplains represent something broader and deeply human: spiritual care—the comfort, connection, and meaning that help patients and families navigate life’s most profound moments.

At Lightways Hospice and Serious Illness Care, our chaplains are an essential part of the interdisciplinary care team, supporting patients and families in ways that honor every belief, background, and life story.

More Than Religion—It is About Meaning

Hospice chaplains provide spiritual and emotional care, not just religious guidance. They meet patients exactly where they are, whether that means prayer, reflection, storytelling, or simply quiet presence.

For some, that support comes through familiar faith traditions. For others, it may involve talking about life’s purpose, fears, or legacy. A hospice chaplain’s role is to listen without judgment and to help people find comfort, connection, and peace in whatever gives their life meaning.

Supporting the Whole Family

Serious illness and end-of-life experiences affect more than the patient; they touch everyone who loves them. Chaplains walk alongside families, offering gentle guidance and compassionate listening during times of uncertainty, grief, and transition.

They help families communicate more openly, navigate difficult emotions, and find strength in shared values and memories. Chaplains often lead bedside rituals, coordinate spiritual practices that are meaningful to the family, and provide support after a loved one has died through memorials.

Part of a Team That Cares for the Whole Person

Hospice and palliative care are about more than managing physical symptoms; it is about caring for the whole person: body, mind, and spirit. Chaplains collaborate closely with nurses, social workers, nurses’ aides, integrative therapists, physicians, and volunteers to ensure that spiritual and emotional needs are part of each patient’s care plan.

They often help the team understand what truly matters most to a patient—guiding decisions about care and ensuring that each person’s values and beliefs are respected through every stage of illness.

Bringing Comfort in Every Moment

At the heart of chaplaincy is presence. Other times, it is sitting quietly and listening to a life story. It might be helping a family say goodbye or simply holding space for silence when there are no words. In a life spent doing so much, sometimes simply being is enough. It is sitting with a family during a time of crisis. It is honoring a life story. It is holding space for loved ones to say goodbye on their terms.

No matter the form it takes, chaplain care reminds patients and families that they are not alone—that even in life’s most difficult moments, compassion and connection remain.

A Light in the Journey

At Lightways Hospice and Serious Illness Care, we believe that every person deserves comfort, dignity, and peace. Guided by our belief in the power of spiritual care, our chaplains bring calm and compassion to the bedside, helping families discover meaning, hope, and healing.

Because hospice is not just about how we die, it is about how we live, and the love and support that surround us every step of the way.

For more information, contact Lightways Hospice and Serious Illness Care at 815.740.4104.

How Serious Illness (Palliative) Care Empowers Those Living with Breast Cancer

How Serious Illness (Palliative) Care Empowers Those Living with Breast Cancer

Supporting the Journey: How Serious Illness (Palliative) Care Empowers Those Living with Breast Cancer

Breast Cancer support ribbon

Every October, the world turns pink for Breast Cancer Awareness Month — a time to celebrate survivors, remember those we have lost, and renew our commitment to early detection and comprehensive care. Yet behind the ribbons and fundraising walks lies another essential part of the breast cancer journey — one that deserves more attention: Serious Illness Care, also known as palliative care.

What Is Serious Illness Care?

Serious Illness Care is a specialized approach focused on improving the quality of life for individuals living with serious illnesses like breast cancer. It is not limited to end-of-life support — in fact, it can begin at diagnosis and continue alongside active treatments such as chemotherapy, radiation, or surgery.

At its heart, Serious Illness Care provides an extra layer of support from a multidisciplinary team of doctors, nurse practitioners, social workers, and other professionals who partner with a patient’s oncology team. Together, they manage symptoms, ease emotional distress, and help patients and families navigate complex medical decisions with clarity and compassion.

For those living with breast cancer, this care may include:

  • Relief from pain and symptoms such as fatigue, nausea, breathlessness, or neuropathy
  • Emotional and spiritual support helps cope with anxiety, depression, and uncertainty.
  • Guidance to make treatment decisions aligned with personal goals and values.
  • Support for families and caregivers who face their own emotional and practical challenges.

Palliative care complements — not replaces — oncology treatments. Patients can receive this support at any stage of their illness, helping them live as fully and comfortably as possible.

Why Serious Illness Care Matters

A breast cancer diagnosis changes everything. Treatment can bring physical exhaustion, emotional strain, and countless unknowns. Serious Illness Care steps in to ease that burden and restore balance — addressing the person, not just the disease.

  1. Managing Pain and Side Effects
    Expert symptom management and integrative therapies such as massage or relaxation techniques reduce discomfort, allowing patients to focus on healing and living well.
  2. Emotional Healing and Resilience
    Serious Illness Care teams support patients and families through fear, grief, and uncertainty — ensuring no one walks this path alone.
  3. Clarity and Communication
    Specialists help patients understand their options and make informed choices that reflect their wishes, values, and quality-of-life goals.
  4. Family Support
    Loved ones often shoulder heavy caregiving and emotional responsibilities. Serious Illness Care provides them with guidance, respite, and counseling to sustain their strength and hope.

Honoring Breast Cancer Awareness Month — and Expanding the Conversation

October is more than a symbol of awareness — it is a call to action. Beyond early detection, we must also champion care that nurtures comfort, dignity, and connection at every stage of the journey.

By embracing Serious Illness Care, we ensure that those living with breast cancer receive not only expert medical treatment but also the emotional and spiritual care that makes each day more meaningful.

At Lightways Hospice and Serious Illness Care, we bring light into life’s most challenging times — offering relief, understanding, and hope to patients and families across our community.

This October, as we wear our pink ribbons, let us also raise our voices for Serious Illness Care — an essential part of treatment, healing, and living better through breast cancer.

Information

For more information, contact Lightways Hospice and Serious Illness Care at 815.740.4104.

Understanding Advanced Directives: Why They Matter

Understanding Advanced Directives: Why They Matter

Understanding Advanced Directives: Why They Matter

Nurse walking with elderly women outdoors on a beautiful sunny day.

When it comes to healthcare, we often think we have all the time in the world to make decisions about our future. But what happens if we are suddenly unable to voice our wishes? This is where advanced directives come into play. If you’ve never heard of them, or you’re not sure what they entail, don’t worry. Let’s break it down in simple terms.

What Are Advanced Directives?

Advanced directives are legal documents that allow you to express your preferences about medical treatment if you cannot communicate those wishes yourself. They are like a roadmap for your healthcare, helping you navigate some of life’s toughest decisions. Think of it to make your voice heard — even when you cannot speak.

There are a couple of main types of advanced directives:

  1. Living Will: This document outlines your wishes concerning medical treatments — like whether you want life-sustaining measures if you’re terminally ill or in a persistent vegetative state. This document is not legally binding, but it directs your team about your wishes.
  2. Durable Power of Attorney for Health Care: This one is slightly different. It allows you to appoint someone you trust (your agent) to make medical decisions on your behalf if you cannot do so. This person can advocate for your wishes and ensure your preferences are honored. This is a legally binding document.
  3. Do Not Resuscitate (DNR) Order: If you do not want CPR or other life-saving measures used in case of cardiac arrest, a DNR order clearly communicates that wish to medical personnel. In Illinois, this is often called a POLST (Physicians Orders for Life-Sustaining Treatment) in the home or facility setting.

Why Should You Care About Advanced Directives?

You might be thinking, “I’m young and healthy. Why should I worry about this?” Life is unpredictable, and having an advanced directive can provide peace of mind — not just for you, but for your loved ones too.

You might also be thinking, “I don’t want to scare my spouse or my children with these conversations.” Please believe us when we tell you that this is one of the greatest gifts you can give them: a calm, open, and reasonable discussion before a crisis happens. When the crisis happens, your spouse or children have so many other things to deal with, including their sadness and fear. It is such a comfort to know they understand your wishes.

You get to decide what medical treatment you do or do not want. It’s your body, your life, and your choices.

What Happens Without an Advanced Directive in Illinois?

In Illinois, if you become incapacitated and can’t communicate your wishes, decisions about your care will fall to a hierarchy of individuals:

  1. Your Spouse: Your spouse usually has the first say in your medical decisions if you’re married.
  2. Adult Children: If you don’t have a spouse, your adult children will step in next in order of their birth.
  3. Parents: If you don’t have a spouse or children, your parents will be consulted.
  4. Adult Siblings: If your parents are unavailable, your adult siblings will have a say.
  5. Finally, if no one else is available, other relatives may be consulted.

While this may seem straightforward, it can lead to complications. Family members might disagree on what you would have wanted, which can create stress and conflict during a vulnerable time. In some cases, the matter might even end up in court, where a judge will make the final decision — not the outcome you would have preferred.

How to Create Your Advanced Directive

Ready to take control? Here is a simple step-by-step guide to creating your advanced directive:

  1. Think It Through: Reflect on your values and what is important to you regarding healthcare. What treatments would you want or not want?
  2. Choose Your Agent: If you’re creating a Durable Power of Attorney for Health Care, think about who you trust to make decisions on your behalf. This should be someone who knows you well and can advocate for your wishes. Choose someone who can stand up to pressure from the family and communicate well with your health care team if possible.
  3. Get the Right Forms: You can find advanced directive forms online or through your healthcare provider. Make sure you get the Illinois-specific forms to ensure they’re valid in your state. For more information and links to resources, please visit our website at https://lightways.org/advanced-directives/.
  4. Fill It Out: Be clear and specific about your wishes. Don’t hesitate to think things through carefully; this document is about you and your preferences.
  5. Talk About It: Share your advanced directive with your chosen agent, family members, and your healthcare provider. Open communication is key!
  6. Keep Copies Handy: Store copies of your advanced directive safely and give copies to your healthcare provider (physicians, consultants, home health, hospice, and facilities) and family members.

Creating an advanced directive is a powerful way to take charge of your healthcare decisions and ensure your wishes are respected, no matter what happens. It is a gift to yourself and your loved ones — a way to navigate the unpredictable waters of life with confidence. So, why not take the time to create one? You will be glad you did.

Advanced Directive Information

If you have additional questions, please contact Lightways Hospice and Serious Illness Care at 815.740.4104.

Through darkness, we bring light

Contact Lightways

For more information on Advanced Directives, please contact us directly at 815.740.4104.

Lightways Grief Support Services

Lightways Grief Support Services

Lightways Grief Support Services

Hands holding a heart with the word support

“The loss of a loved one is a common experience shared by all humanity, yet grief can leave us feeling more alone, confused and unsettled than almost any other experience.”

- C.S. Lewis, A Grief Observed

There is a paradox about grief. Even though it is universal, it can still cause feelings of isolation. Many of our grievers describe the moment after their loved one dies as the moment when “my world stopped, and the rest of the world kept moving.” It can be very disorienting, disruptive, and overwhelming for many. In a world where there is so much discomfort in talking about death and dying, some feel unsupported and unacknowledged in their grief. Lightways is dedicated to ensuring that no one must grieve alone.

One of the main ways that Lightways meets this mission is to offer free grief support to anyone in the community after the death of a loved one. The Grief Support Program provides a variety of grief support services to meet an array of diverse grief support needs. These include grief counseling for individuals and families, grief support group meetings, grief workshops and special memorial events to give families many opportunities to honor their loved one throughout the year. In the summer, Lightways also hosts an annual kid’s camp for children ages 7-13 who have experienced the death of a loved one.

Services are offered both in person and virtually and focus on helping grievers gain a better understanding of their loss, how it has affected them, and how they can best cope.

Grief Support Education

In addition to grief support, the Grief Support Program also educates individuals, families, and the community about grief. This includes:

  • Education to parents/caregivers on how to explain a death to a child, as well as how to support their grieving child.
  • Education for professionals and the community on how to support someone who is grieving.
  • Education to agencies on how to support staff and their community after a death.

Grief support services information

For more information on Lightways Hospice and Serious Illness Care Grief Support services, please contact us directly at 815.460.3295 or email us directly at [email protected].

Measuring our 2024 Impact in Numbers

The number of people the Lightways Grief Support Program serves each year continues to increase, as more people utilize hospice care, and as more people learn about our services. In 2024…

condolence calls were made to hospice families

people called Lightways for grief support

people received grief counseling

(21% of the clients coping with a traumatic loss such as a sudden, unexpected death, a substance related death, a pediatric death, an accident, a homicide, suicide, or other trauma).

counseling sessions were provided

(28% of these sessions were provided for community members).

people participated in a support group

people participated in a special event

kids attended the Peace of the Heart Kids Camp in 2024

Chart measuring Grief Support

Through darkness, we bring light

Contact Lightways

For more information on Lightways Hospice and Serious Illness Care Grief Support services, please contact us directly at 815.460.3295 or email us directly at [email protected].