Compassionate Care for Kids: Understanding Pediatric Hospice and Palliative Care Services

Compassionate Care for Kids: Understanding Pediatric Hospice and Palliative Care Services

Compassionate Care for Kids: Understanding Pediatric Hospice and Palliative Care Services

When a child is diagnosed with a life-limiting or complex medical condition, families face an emotionally overwhelming and uncertain path. In these moments, pediatric palliative and hospice care can offer comfort, guidance, and meaningful support. Yet, many families are unfamiliar with what these services are—or worse, fear them due to common misconceptions.

What Is Pediatric Palliative and Hospice Care?

Pediatric palliative care is specialized medical care for children with serious, chronic, or life-threatening illnesses. It focuses on improving quality of life by managing physical symptoms, providing emotional and spiritual support, and helping families make informed decisions throughout their journey.

Pediatric hospice care is a form of palliative care specifically for children who are approaching the end of life—typically when life expectancy is measured in months rather than years. It ensures that children are cared for with comfort and dignity, often in the home or a familiar setting, surrounded by loved ones.

Who Can Benefit from Pediatric Palliative Care?

Palliative care is appropriate for children facing a wide range of serious conditions, such as:

  • Cancer
  • Congenital heart disease
  • Genetic or metabolic disorders
  • Neurological conditions like severe cerebral palsy
  • Muscular dystrophies
  • Cystic fibrosis
  • Complications of prematurity
  • Rare or undiagnosed illnesses

It is not limited by prognosis—children can receive palliative care at any stage of their illness and even while undergoing curative treatment.

The Benefits of Pediatric Palliative and Hospice Care

  1. Holistic Symptom Management
    Palliative care teams are experts in controlling pain, nausea, fatigue, breathing difficulties, seizures, and other distressing symptoms—, allowing children to feel more comfortable and present.
  2. Emotional and Psychological Support
    Serious illness affects the whole family. Palliative care includes age-appropriate counseling for the child and emotional support for siblings, parents, and caregivers. Lightways Hospice and Serious Illness Care has a team of Child Life Specialists that support children and their families with the stresses of having a loved one who is in hospice or has a serious illness through guiding conversations, caregiver support, coping strategies, therapeutic play, education, advocacy, memory making/legacy building, and bereavement support.
  3. Care Coordination and Advocacy
    The palliative team helps works to coordinate between specialists, hospitals, and home care providers—ensuring that the child’s care is seamlesscoordinated, consistent, and family-centered.
  4. Spiritual and Cultural Sensitivity
    Families receive support that respects their values, beliefs, and traditions during times of uncertainty and grief.
  5. End-of-Life Support (Hospice Care)
    When curative options are no longer effective, pediatric hospice care offers compassionate comfort, memory-making opportunities, and dignified support—often in the home environment, where children and families feel most at ease.

Why Early Enrollment Matters

A common myth is that palliative or hospice care is only for the very end of life. In fact, early integration leads to better outcomes, including:

  • Earlier and more effective symptom management
  • Less time in the hospital and more time at home
  • Reduced parental stress and caregiver burnout
  • More time to plan meaningful goals and experiences
  • Smoother transitions in care as needs change

Enrolling early means families have more time to build trust with the care team, express their hopes and fears, and explore all available options—without pressure.

What are the Common Misconceptions of Pediatric Hospice and Palliative Care?

“It means we’re giving up.”
Not true. Palliative care is about living better—not surrendering. Many children continue treatments like chemotherapy, surgeries, or experimental therapies while receiving palliative support.

“Hospice is just for adults.”
Pediatric hospice is tailored to the unique needs of children and their families. It includes specialized staff trained to handle both complex medical care and emotional dynamics specific to pediatric illness.

“It’s only for children who are dying.”
Palliative care is beneficial from diagnosis, through treatment, remission, or in rare cases, recovery. It is as much about living well as it is about supporting the end-of-life process, when needed.

“My child’s doctors will tell me when it’s time.”
Unfortunately, many families are referred too late. It’s okay—and often beneficial—for families to ask about palliative care early in the disease course.

Choosing Support Early Is a Gift

Pediatric palliative and hospice care is not about giving up hope—it’s about expanding it. It offers hope for comfort, for quality time, for meaningful moments, and for a care journey centered on love and dignity.

No parent should have to navigate a child’s serious illness alone. Palliative care teams are here to walk alongside, offering skilled, compassionate care every step of the way.

If your child is facing a serious illness, ask your healthcare team if palliative care is an option or reach out directly to Lightways Hospice and Serious Illness Care at 815.740.4104. Starting early can bring clarity, comfort, and peace in even the most difficult circumstances.

Insurance Coverage & Financial Assistance

Coverage for concurrent care varies by insurance provider and plan type. Lightways Hospice and Serious Illness Care is committed to working with families to help navigate their individual coverage and benefits.

Additionally, Lightways provides charity care and financial assistance to eligible families to ensure that care is accessible regardless of financial circumstances.
Please contact us at 815.740.4104 or speak directly to a social worker assigned to your case for more information on how to apply for charity care or financial assistance.

What is Concurrent Care?

Concurrent care allows children with serious illnesses to receive both curative treatments (such as chemotherapy, disease-modifying therapies, or other medical interventions) and palliative or hospice care at the same time. This approach ensures that children and their families receive symptom management, pain relief, and emotional support while continuing treatments aimed at their underlying condition.

Coverage for concurrent care varies based on insurance plans and state-specific Medicaid policies. Families should check with their insurance provider to understand their specific benefits. If you have questions, our Lightways team is available to help guide you through the process.

Schedule a consultation

Contact Lightways Hospice and Serious Illness Care directly at 815.740.4104 for additional information or to schedule a consultation.

Atención compasiva para niños: Comprensión de los servicios de cuidados paliativos y hospicio pediátricos

Atención compasiva para niños: Comprensión de los servicios de cuidados paliativos y hospicio pediátricos

Atención compasiva para niños: Comprensión de los servicios de cuidados paliativos y hospicio pediátricos

Nurse with stethoscope listening to childs heart.

Cuando a un niño se le diagnostica una afección médica compleja o que limita su vida, las familias se enfrentan a un camino emocionalmente abrumador e incierto. En estos momentos, los cuidados paliativos pediátricos y los cuidados paliativos pueden ofrecer consuelo, orientación y apoyo significativo. Sin embargo, muchas familias no están familiarizadas con lo que son estos servicios o, lo que es peor, les temen debido a conceptos erróneos comunes.

¿Qué son los cuidados paliativos y de hospicio pediátricos?

Los cuidados paliativos pediátricos son atención médica especializada para niños con enfermedades graves, crónicas o potencialmente mortales. Se enfoca en mejorar la calidad de vida mediante el manejo de los síntomas físicos, brindando apoyo emocional y espiritual, y ayudando a las familias a tomar decisiones informadas a lo largo de su viaje.

Los cuidados paliativos pediátricos son una forma de cuidados paliativos específicamente para niños que se acercan al final de la vida, generalmente cuando la esperanza de vida se mide en meses en lugar de años. Garantiza que los niños sean atendidos con comodidad y dignidad, a menudo en el hogar o en un entorno familiar, rodeados de sus seres queridos.

¿Quién puede beneficiarse de los cuidados paliativos pediátricos?

Los cuidados paliativos son apropiados para los niños que enfrentan una amplia gama de afecciones graves, como:

  • Cáncer
  • Cardiopatías congénitas
  • Trastornos genéticos o metabólicos
  • Afecciones neurológicas como la parálisis cerebral grave
  • Distrofias musculares
  • Fibrosis quística
  • Complicaciones de la prematuridad
  • Enfermedades raras o no diagnosticadas

No está limitado por el pronóstico: los niños pueden recibir cuidados paliativos en cualquier etapa de su enfermedad e incluso mientras se someten a un tratamiento curativo.

Los beneficios de los cuidados paliativos y de hospicio pediátricos

  1. Manejo de los síntomas. Los equipos de cuidados paliativos son expertos en controlar el dolor, las náuseas, la fatiga, las dificultades respiratorias, las convulsiones y otros síntomas angustiantes, lo que permite que los niños se sientan más cómodos y presentes.
  2. Apoyo emocional y psicológico. Las enfermedades graves afectan a toda la familia. Los cuidados paliativos incluyen asesoramiento apropiado para la edad del niño y apoyo emocional para los hermanos, padres y cuidadores. Lightways Hospice and Serious Disease Care cuenta con un equipo de especialistas en vida infantil que apoyan a los niños y sus familias con el estrés de tener un ser querido que está en un hospicio o tiene una enfermedad grave a través de conversaciones orientadoras, apoyo del cuidador, estrategias de afrontamiento, juego terapéutico, educación, defensa, creación de memoria/construcción de legado y apoyo para el duelo.
  3. Coordinación y defensa de la atención. El equipo de cuidados paliativos trabaja para coordinar entre especialistas, hospitales y proveedores de atención domiciliaria, lo que garantiza que la atención del niño sea coordinada, coherente y centrada en la familia.
  4. Sensibilidad espiritual y cultural. Las familias reciben apoyo que respeta sus valores, creencias y tradiciones en tiempos de incertidumbre y dolor.
  5. Apoyo para el final de la vida (cuidados paliativos)
    Cuando las opciones curativas ya no son eficaces, los cuidados paliativos pediátricos ofrecen consuelo compasivo, oportunidades para crear recuerdos y apoyo digno, a menudo en el entorno familiar, donde los niños y las familias se sienten más cómodos.

¿Por qué es importante la inscripción temprana?

Un mito común es que los cuidados paliativos o de hospicio son solo para el final de la vida. De hecho,la integración temprana conduce a mejores resultados, que incluyen:

  • Manejo temprano y más eficaz de los síntomas
  • Menos tiempo en el hospital y más tiempo en casa
  • Reducción del estrés de los padres y del agotamiento del cuidador
  • Más tiempo para planificar metas y experiencias significativas
  • Transiciones más suaves en la atención a medida que cambian las necesidades

La inscripción temprana significa que las familias tienen más tiempo para generar confianza con el equipo de atención, expresar sus esperanzas y temores, y explorar todas las opciones disponibles, sin presión.

¿Cuáles son los conceptos erróneos comunes sobre los cuidados paliativos y de hospicio pediátricos?

“Significa que nos estamos rindiendo”.
No es verdad. Los cuidados paliativos consisten envivir mejor, no en rendirse. Muchos niños continúan tratamientos como quimioterapia, cirugías o terapias experimentales mientras reciben apoyo paliativo.

“El hospicio es solo para adultos”.
El hospicio pediátrico se adapta a las necesidades únicas de los niños y sus familias. Incluye personal especializado y capacitado para manejar tanto la atención médica compleja como la dinámica emocional específica de las enfermedades pediátricas.

“Es solo para los niños que se están muriendo”.
Los cuidados paliativos son beneficiosos desde el diagnóstico, pasando por el tratamiento, la remisión o, en casos raros, la recuperación. Se trata tanto de vivir bien como de apoyar el proceso del final de la vida, cuando sea necesario.

“Los médicos de mi hijo me dirán cuándo es el momento”.
Desafortunadamente, muchas familias son referidas demasiado tarde. Está bien, y a menudo es beneficioso, que las familias pregunten sobre los cuidados paliativos en las primeras etapas del curso de la enfermedad.

Elegir el soporte temprano es un regalo

Los cuidados paliativos y de hospicio pediátricos no se trata de perder la esperanza, sino de expandirla. Ofrece esperanza de consuelo, de tiempo de calidad, de momentos significativos y de un viaje de cuidado centrado en el amor y la dignidad.

Ningún padre debería tener que lidiar solo con la grave enfermedad de un niño. Los equipos de cuidados paliativos están aquí para acompañarlos, ofreciendo atención capacitada y compasiva en cada paso del camino.

Si su hijo enfrenta una enfermedad grave, pregúntele a su equipo de atención médica si los cuidados paliativos son una opción o comuníquese directamente con Lightways Hospice and Serious Illness Care al 815.740.4104. Comenzar temprano puede traer claridad, consuelo y paz incluso en las circunstancias más difíciles.

Cobertura de seguro y asistencia financiera

La cobertura para la atención concurrente varía según el proveedor de seguro y el tipo de plan. Lightways Hospice and Serious Disease Care se compromete a trabajar con las familias para ayudar a navegar por su cobertura y beneficios individuales.

Además, Lightways brinda atención caritativa y asistencia financiera a las familias elegibles para garantizar que la atención sea accesible independientemente de las circunstancias financieras.

Comuníquese con nosotros al 815.740.4104 o hable directamente con un trabajador social asignado a su caso para obtener más información sobre cómo solicitar atención caritativa o asistencia financiera.

¿Qué es la atención concurrente?

La atención concurrente permite que los niños con enfermedades graves reciban tratamientos curativos (como quimioterapia, terapias modificadoras de la enfermedad u otras intervenciones médicas) y cuidados paliativos o de hospicio al mismo tiempo. Este enfoque garantiza que los niños y sus familias reciban control de los síntomas, alivio del dolor y apoyo emocional mientras continúan los tratamientos dirigidos a su afección subyacente.

La cobertura de la atención concurrente varía según los planes de seguro y las pólizas de Medicaid específicas del estado. Las familias deben consultar con su proveedor de seguros para comprender sus beneficios específicos. Si tiene preguntas, nuestro equipo de Lightways está disponible para ayudarlo a guiarlo a través del proceso.

Programe una consulta

Para obtener más información o programar una consulta, comuníquese directamente con Lightways Hospice and Serious Illness Care al 815.740.4104.

Understanding Advanced Directives: Why They Matter

Understanding Advanced Directives: Why They Matter

Understanding Advanced Directives: Why They Matter

Nurse walking with elderly women outdoors on a beautiful sunny day.

When it comes to healthcare, we often think we have all the time in the world to make decisions about our future. But what happens if we are suddenly unable to voice our wishes? This is where advanced directives come into play. If you’ve never heard of them, or you’re not sure what they entail, don’t worry. Let’s break it down in simple terms.

What Are Advanced Directives?

Advanced directives are legal documents that allow you to express your preferences about medical treatment if you cannot communicate those wishes yourself. They are like a roadmap for your healthcare, helping you navigate some of life’s toughest decisions. Think of it to make your voice heard — even when you cannot speak.

There are a couple of main types of advanced directives:

  1. Living Will: This document outlines your wishes concerning medical treatments — like whether you want life-sustaining measures if you’re terminally ill or in a persistent vegetative state. This document is not legally binding, but it directs your team about your wishes.
  2. Durable Power of Attorney for Health Care: This one is slightly different. It allows you to appoint someone you trust (your agent) to make medical decisions on your behalf if you cannot do so. This person can advocate for your wishes and ensure your preferences are honored. This is a legally binding document.
  3. Do Not Resuscitate (DNR) Order: If you do not want CPR or other life-saving measures used in case of cardiac arrest, a DNR order clearly communicates that wish to medical personnel. In Illinois, this is often called a POLST (Physicians Orders for Life-Sustaining Treatment) in the home or facility setting.

Why Should You Care About Advanced Directives?

You might be thinking, “I’m young and healthy. Why should I worry about this?” Life is unpredictable, and having an advanced directive can provide peace of mind — not just for you, but for your loved ones too.

You might also be thinking, “I don’t want to scare my spouse or my children with these conversations.” Please believe us when we tell you that this is one of the greatest gifts you can give them: a calm, open, and reasonable discussion before a crisis happens. When the crisis happens, your spouse or children have so many other things to deal with, including their sadness and fear. It is such a comfort to know they understand your wishes.

You get to decide what medical treatment you do or do not want. It’s your body, your life, and your choices.

What Happens Without an Advanced Directive in Illinois?

In Illinois, if you become incapacitated and can’t communicate your wishes, decisions about your care will fall to a hierarchy of individuals:

  1. Your Spouse: Your spouse usually has the first say in your medical decisions if you’re married.
  2. Adult Children: If you don’t have a spouse, your adult children will step in next in order of their birth.
  3. Parents: If you don’t have a spouse or children, your parents will be consulted.
  4. Adult Siblings: If your parents are unavailable, your adult siblings will have a say.
  5. Finally, if no one else is available, other relatives may be consulted.

While this may seem straightforward, it can lead to complications. Family members might disagree on what you would have wanted, which can create stress and conflict during a vulnerable time. In some cases, the matter might even end up in court, where a judge will make the final decision — not the outcome you would have preferred.

How to Create Your Advanced Directive

Ready to take control? Here is a simple step-by-step guide to creating your advanced directive:

  1. Think It Through: Reflect on your values and what is important to you regarding healthcare. What treatments would you want or not want?
  2. Choose Your Agent: If you’re creating a Durable Power of Attorney for Health Care, think about who you trust to make decisions on your behalf. This should be someone who knows you well and can advocate for your wishes. Choose someone who can stand up to pressure from the family and communicate well with your health care team if possible.
  3. Get the Right Forms: You can find advanced directive forms online or through your healthcare provider. Make sure you get the Illinois-specific forms to ensure they’re valid in your state. For more information and links to resources, please visit our website at https://lightways.org/advanced-directives/.
  4. Fill It Out: Be clear and specific about your wishes. Don’t hesitate to think things through carefully; this document is about you and your preferences.
  5. Talk About It: Share your advanced directive with your chosen agent, family members, and your healthcare provider. Open communication is key!
  6. Keep Copies Handy: Store copies of your advanced directive safely and give copies to your healthcare provider (physicians, consultants, home health, hospice, and facilities) and family members.

Creating an advanced directive is a powerful way to take charge of your healthcare decisions and ensure your wishes are respected, no matter what happens. It is a gift to yourself and your loved ones — a way to navigate the unpredictable waters of life with confidence. So, why not take the time to create one? You will be glad you did.

Advanced Directive Information

If you have additional questions, please contact Lightways Hospice and Serious Illness Care at 815.740.4104.

Through darkness, we bring light

Contact Lightways

For more information on Advanced Directives, please contact us directly at 815.740.4104.

Common Hospice Care Myths: What You Really Need to Know

Common Hospice Care Myths: What You Really Need to Know

Common Hospice Care Myths: What You Really Need to Know

Nurse walking with elderly women outdoors on a beautiful sunny day.

Let’s dive into a topic many people find daunting or confusing: hospice care.

There are so many myths floating around that it’s easy to misunderstand what hospice is about. Whether you’re considering hospice for a loved one or want to expand your knowledge, let’s clear up some common misconceptions together!

Myth 1: Hospice is Only for the Last Days of Life

One of the biggest myths is that hospice care is only for those who are in their final days of life. Hospice can be initiated at any point when a patient has been diagnosed with a terminal illness and has decided to stop curative treatment.

This means individuals can benefit from hospice services weeks and months before death. The Medicare Hospice Benefit is a six-month benefit. Medicare and Medicaid are intended for patients to receive at least six months of hospice care. The goal is to enhance the quality of life, manage symptoms, and support the patient and their family.

There are several studies that show patients can live LONGER with hospice care because of increased care, decreased unnecessary and toxic medications and treatments, and more comfort. Lightways can come to you, and talk in the comfort of your home, and discuss how we can help navigate your journey. Hospice care can be provided to a patient wherever they call home – skilled nursing facility, assisted living facility, home, hospital, or the Lightways Inpatient Hospice Unit located in Joliet, Illinois.

Myth 2: Choosing Hospice Means Giving Up

Many people think that opting for hospice means they are giving up on themselves or their loved one. On the contrary, choosing hospice is often a proactive decision to focus on comfort and quality of life, rather than curative treatments that may not improve the patient’s condition.

Hospice care is all about providing support, managing symptoms, and ensuring that the patient’s wishes are respected, not giving up! Hospice is about hope! Hope for comfort, an important event like a birth or wedding, a milestone like an anniversary, or that trip to Italy. Lightways understands this is your journey, and we encourage patients and families to be involved in the patient’s care plan.

Myth 3: Hospice Care is Just for Cancer Patients

While it’s true that many hospice patients have cancer, hospice is not limited to just cancer diagnoses. Hospice care is available for anyone facing a terminal illness, whether that’s heart disease, lung disease (COPD), Alzheimer’s and dementia, kidney disease, ALS, or any other life-limiting condition.

Every individual deserves compassionate end-of-life care, regardless of their diagnosis. Hospice can also be provided to a patient of any age. If you are unsure if you or your loved one is eligible for hospice, Lightways can provide you with an evaluation of what services are available.

Myth 4: You Can’t Have Hospice Care and Continue Seeing Your Doctor

Some people believe that once they enter hospice care, they can no longer see their primary care physician or specialists. This is not the case! While hospice does involve a team of healthcare professionals who coordinate care, patients can still maintain a relationship with any of their doctors and any of their doctors can continue to bill Medicare or insurance.

In fact, many primary care physicians support the hospice process and work in tandem with the hospice team to provide the best care possible. When consenting to services, every patient has the right to choose an attending physician of their choice.

Myth 5: Hospice is Only for Patients

Many people think that hospice care is solely for the patient, but it is really about the whole family. The Lightways hospice team provides emotional, spiritual, and practical support for family members as well. Lightways understands caregiving can be incredibly challenging, so we offer counseling, respite care, and other resources to help families navigate this difficult journey together.

One of the greatest gifts of hospice is that we teach you what to expect next and how to take care of your loved one. No one has done this before; this is hard. Lightways also offers a remarkable grief support team available to you at any stage of your grieving process. In fact, some families may experience anticipatory grief right from the start, and having the right support can make all the difference.

Myth 6: Hospice Care is Expensive

There is a common misconception that hospice care is paid out of pocket by the patient and their family. However, hospice services are covered by Medicare, Medicaid, and most private insurance plans. This means that families pay nothing out of pocket for the services provided for anything related to the hospice diagnosis.

If you or your loved one does not have medical insurance, we encourage you to reach out and discuss how we can assist you. At Lightways, we believe that everyone deserves compassionate care, regardless of their ability to pay. Let’s sit down together and explore the options available to ensure you receive the support you need during this crucial time.

Myth 7: Hospice Care is Just About Dying

While hospice does focus on end-of-life care, it’s so much more than just preparing for death. It’s about living fully in the time that remains. Lightways encourages patients to engage in meaningful activities, spend quality time with loved ones, and enjoy life as much as possible. The goal is to create a peaceful, fulfilling environment where patients feel loved and supported.

Navigating the world of hospice care can be overwhelming, but understanding the facts can make a significant difference. By dispelling these myths, our knowledgeable Lightways team can help families make informed decisions about their care options and ensure everyone receives the compassionate support they deserve.

Additional Hospice Information

If you or a loved one is considering hospice care or would like additional information, please reach out to our friendly, compassionate referral staff today at 815.740.4104.

We will provide accurate information, answer your questions, and help you through this crucial process. Help is just a phone call away.

Through darkness, we bring light

Contact Lightways

For more information on Lightways Hospice and Serious Illness Care services, please contact us directly at 815.460.3295.

Understanding Medicare and Insurance Coverage & Benefits for Hospice and Serious Illness Care (Palliative Care)

Understanding Medicare and Insurance Coverage & Benefits for Hospice and Serious Illness Care (Palliative Care)

Understanding Medicare, Insurance Coverage & Benefits for Hospice & Serious Illness Care (Palliative Care)

Nurse setting with patient reviewing documents

Navigating Coverage Options

When a loved one faces a serious illness or declining health, understanding hospice and palliative care insurance coverage can seem daunting. Many families worry about the financial aspects of care, questioning what Medicare, Medicaid or private insurance will cover. The good news is that hospice and palliative care services are often fully or partially covered, providing relief to families during an emotionally challenging time.

This guide will lead you through the specifics of Medicare, Medicaid and private insurance coverage for hospice and palliative care – helping you understand your options and enabling you to make informed choices for care of your loved one. It is also important to remember that Lightways is a non-profit organization and cares for patients regardless of their ability to pay.

Medicare Coverage for Hospice Services

The Medicare Hospice Benefit has been in place since 1982 and is a comprehensive benefit. Medicaid typically mimics the Medicare benefit depending on whether you have joined a managed care Medicaid. Please allow us to check your Medicaid coverage.

Eligibility Requirements for Medicare Hospice Coverage:

To be eligible for Medicare’s hospice benefit, a patient needs to:

  • Be enrolled in Medicare Part A.
  • Have a diagnosis of a terminal illness with a prognosis of six months or fewer, as confirmed by two physicians.
  • Made the decision to prioritize comfort care and forego curative therapies.Receive hospice from a licensed provider approved by Medicare and Medicaid.

For additional information, visit: Medicare Hospice Benefits

What Medicare and Medicaid Covers:

Medicare provides coverage for almost all services related to hospice and the hospice diagnosis, which can include:

  • Medical care provided by the hospice medical director and nurses who focus on managing your illness as well as your pain and symptom control.
  • Medications related to your care and for alleviating pain and managing symptoms.
  • Medical equipment and supplies including hospital beds, mobility aids, oxygen, and anything to manage to your illness.
  • Physical therapy if you are able to tolerate and have a quality-of-life goal.
  • Respite care for up to five days per stay in a Medicare-certified facility. Lightways can provide this in our inpatient unit or in a contracted long-term care facility.
  • Grief support for a minimum of up to 13 months following the death of a loved one. This can include workshops, groups or one of one counseling.

What Medicare and Medicaid Does Not Cover:

  • Curative care like chemotherapy or radiation aimed at eradicating the disease.
  • Accommodations and meals at home or in a nursing home

Medicare Coverage for Palliative Care

Palliative care, aimed at providing whole person care for patients with a serious, chronic, illness is reimbursed differently than hospice care. Rather than having a specific Medicare benefit, palliative care services are included under standard Medicare benefits in Part A (Hospital Visits) and Part B (Outpatient Care). Every organization that provides palliative care can look different. Medicaid coverage will depend on whether you have a managed care Medicaid plan. Please allow us to check your benefits.

What Medicare Includes for Palliative Care:

  • Visits by a palliative care nurse practitioner or physician in the hospital, long term care facility or in your home.
  • Visits by a social worker to help coordinate care and provide support.
  • Referrals to home health or other specialty services.
  • Some programs, such as Lightways, use telehealth for end stage cardiac and lung disease.
  • Some programs, such as Lightways, provide 24 phone support with a nurse practitioner.

As palliative care doesn’t require a terminal diagnosis or discontinuation of curative treatments, patients can access both palliative and curative care at the same time under Medicare.

Private Insurance & Coverage for Hospice/Palliative Care

The majority of private insurance policies, such as those offered by employers and through the Healthcare.gov marketplace, provide coverage for hospice and palliative care, although the extent of coverage can vary.

What to confirm in a Private Insurance Policy:

  • Network providers – certain plans require care from hospice providers within the network.
  • Deductibles and copayments – in contrast to Medicare, private insurance might involve expenses that come from your own pocket.
  • Restrictions on services – some plans might limit coverage for specific treatments or medications.
  • Families should allow us to contact their insurance company to determine their benefits.

Finding the Right Support & Guidance

Understanding insurance coverage for hospice and palliative care can be challenging, yet you don’t have to face it by yourself. Lightways can assist you in navigating eligibility, coverage choices, and subsequent steps, allowing you to concentrate on what is most important—comfort, dignity, and precious moments with your loved one.

For more information, contact Lightways at 815.740.4104.

Through darkness, we bring light

Contact Lightways

For more information on Lightways Hospice and Serious Illness Care Grief Support services, please contact us directly at 815.460.3295 or email us directly at [email protected].

Lightways Grief Support Services

Lightways Grief Support Services

Lightways Grief Support Services

Hands holding a heart with the word support

“The loss of a loved one is a common experience shared by all humanity, yet grief can leave us feeling more alone, confused and unsettled than almost any other experience.”

- C.S. Lewis, A Grief Observed

There is a paradox about grief. Even though it is universal, it can still cause feelings of isolation. Many of our grievers describe the moment after their loved one dies as the moment when “my world stopped, and the rest of the world kept moving.” It can be very disorienting, disruptive, and overwhelming for many. In a world where there is so much discomfort in talking about death and dying, some feel unsupported and unacknowledged in their grief. Lightways is dedicated to ensuring that no one must grieve alone.

One of the main ways that Lightways meets this mission is to offer free grief support to anyone in the community after the death of a loved one. The Grief Support Program provides a variety of grief support services to meet an array of diverse grief support needs. These include grief counseling for individuals and families, grief support group meetings, grief workshops and special memorial events to give families many opportunities to honor their loved one throughout the year. In the summer, Lightways also hosts an annual kid’s camp for children ages 7-13 who have experienced the death of a loved one.

Services are offered both in person and virtually and focus on helping grievers gain a better understanding of their loss, how it has affected them, and how they can best cope.

Grief Support Education

In addition to grief support, the Grief Support Program also educates individuals, families, and the community about grief. This includes:

  • Education to parents/caregivers on how to explain a death to a child, as well as how to support their grieving child.
  • Education for professionals and the community on how to support someone who is grieving.
  • Education to agencies on how to support staff and their community after a death.

Grief support services information

For more information on Lightways Hospice and Serious Illness Care Grief Support services, please contact us directly at 815.460.3295 or email us directly at [email protected].

Measuring our 2024 Impact in Numbers

The number of people the Lightways Grief Support Program serves each year continues to increase, as more people utilize hospice care, and as more people learn about our services. In 2024…

condolence calls were made to hospice families

people called Lightways for grief support

people received grief counseling

(21% of the clients coping with a traumatic loss such as a sudden, unexpected death, a substance related death, a pediatric death, an accident, a homicide, suicide, or other trauma).

counseling sessions were provided

(28% of these sessions were provided for community members).

people participated in a support group

people participated in a special event

kids attended the Peace of the Heart Kids Camp in 2024

Chart measuring Grief Support

Through darkness, we bring light

Contact Lightways

For more information on Lightways Hospice and Serious Illness Care Grief Support services, please contact us directly at 815.460.3295 or email us directly at [email protected].